I started this thread because I wanted to hear about other MSer's experiences with the 'Wahls Protocol'. It seems that a few of the posters have read the book but have not, actually, followed the plan, fully. I ordered the book, this week. I hope I find some benefit from this program.
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We were excited to get going!
And hit a few bumps along the way…
However, in all seriousness, we remain grateful for our amazing volunteers, members & all who have made MSWorld a valuable resource for all!
July 10, 2024, we celebrated the goodness of these past 28 years. With a heavy heart, we will be ending our services.
We need a financial miracle to keep going forward.
We thank all for your support.
MSWorld's website will close on October 16, 2024.
“I personally want to wish all of you the guidance to find this type of support, as so many do here. Also, my prayers and love extends beyond my understanding. It has been a pleasure to steward this journey.”
God Bless you, Kathleen
Kathleen Wilson
Founding President
❤️
we leave knowing that
we did our best and
stayed true to our mission and purpose.
Please visit our General Questions and Answers forum to read more.
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Wahls protocol
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Originally posted by JerryD View PostI started this thread because I wanted to hear about other MSer's experiences with the 'Wahls Protocol'. It seems that a few of the posters have read the book but have not, actually, followed the plan, fully. I ordered the book, this week. I hope I find some benefit from this program.
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Originally posted by poppydarling View PostI don't think we can ever go wrong with a super-nutritious organic diet, though, no matter what else happens -- it's the main thing in our control. It might not save us from the worst of autoimmune dysfunction but at least we're giving our bodies a fighting chance. The Protocol is so heavy on living foods -- 9 cups a day! -- and I don't know how I'll even approach ingesting that much, even with whole-food smoothies. But I'm going to try. And I'm going to give it at least 3-4 months before I give up.
Breakfast was a green smoothie (something I've been doing for about 10 years). I put in 1c blueberries, 1c strawberries (I usually use a berry and a sweeter fruit but this time I did not), 1c carrots, ~4c kale, 1 1/2t fresh ground flax and enough water to blend.
Snack was sliced banana and a few pieces of mango in non-dairy milk. Later I had 1c of the smoothie mentioned above (I save back 1c for my mid-morning snack or as part of my lunch).
Lunch is my big meal of the day. I had a salad (at least 2c of greens but probably more like 3?) topped with salmon and sauteed asparagus and mushrooms and red peppers. Oh yes, and a clove of garlic. The dressing was 1t apple cider vinegar, 1t olive oil, a little salt and a few squirts of braggs.
Dessert was an orange.
Supper was brown rice noodles (1/2c dry or 1c cooked) with sauteed zucchini and mushrooms and a clove of garlic. (I have a lot of mushrooms right now so I am trying to use them up.) As a note, Wahls considers 2 cloves of garlic as one serving of sulphur vegetables.
That was it, and this is a very typical day for me ... except on this day I had one more fruit than I usually do.
I do my best to eat all organic food however it is just not possible to be 100%. It's amazing how cheap some produce can be at the health food store. Organic lettuce for example is $1.69 a pound ... which SEEMS like a lot until you realize they are selling it by the pound instead of by the head. The regular grocery store sells it by the head for about $1.59 each. The price ends up being pretty much the same for much higher quality stuff.
Local farmers markets are a bargain as well. I am looking forward to when the season begins. I try to grow my own, however my health does not allow for much productivity in that area. Thankfully I have a lot of dear friends who like to give me their garden goodies.
Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
EDSS of 5.5, sometimes 6.0
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Originally posted by JerryD View PostI started this thread because I wanted to hear about other MSer's experiences with the 'Wahls Protocol'. It seems that a few of the posters have read the book but have not, actually, followed the plan, fully. I ordered the book, this week. I hope I find some benefit from this program.
Any change for the better with your diet will make you feel better, even if it's just a 'little better'. Also, positive dietary changes will help prevent other common diseases even if it does not completely halt your MS or even if it does not even touch your MS. I cannot see how you could go wrong giving the Wahls protocol a try. If nothing else, you will glean very useful information and form better dietary habits. No sugar, no dairy, no gluten, no junk or processed foods, LOTS AND LOTS of vegetables and some fruits, high quality meat ... how could one go wrong with that kind if diet?
Please update this thread and let me know how you are doing on the diet. Thank you!!
Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
EDSS of 5.5, sometimes 6.0
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<<Breakfast was a green smoothie (something I've been doing for about 10 years). I put in 1c blueberries, 1c strawberries (I usually use a berry and a sweeter fruit but this time I did not), 1c carrots, ~4c kale, 1 1/2t fresh ground flax and enough water to blend.>>
The most I've managed in one smoothie-sitting is 16 oz. Clearly, I have some work to do
Remember that episode of Seinfeld, where Elaine just wants her "big salad"? That's what I feel like lately--I eat nearly one whole bag of pre-washed salad in one sitting! Crave it now. Better start growing my own organic greens so I don't go broke or get exhausted (farmer's markets are a lot of energy and was part of a CSA but too much for one person who doesn't can, and I hate throwing out food!)
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She never said this was a cure
Dr. Wahl has never said this protocol was a cure. She makes it very clear she is not cured. For her, it has slowed the progression and made her more mobile. The protocol is in clinical trials (proof will be in the outcome, I suppose), and it has worked for her patients, which don't have MS, which is why there are three levels of diet. You determine based on what you are trying to do/heal.
Personally, I would rather make these very restrictive dietary changes than to take pharmaceuticals. Wahl's advocates BOTH, she does not say throw your drugs away and eat your way to health. It seems like a lot of people are angry at her and I don't understand why. If changing her diet, reducing stress and exercising both regularly and via e-stim have worked for her and relieved any of her symptoms, I am happy to hear about it and am willing to try it myself.
We all share what works for us here, so there is no harm in listening what worked for her, and if you can, adopting some of the proctocol in your own life. You are encouraged, in her book, to keep a journal, and if after a month or two, if you see absolutely no improvement, you can always stop. But if it does work, and some of your symptoms subside, then great!
It took decades for many of us to get to where we are, so none of us should expect overnight improvements.
I am a big believer in (try to) fix the root cause of disease, rather than just treating symptoms, so this book and functional medicine theory speak to me. But everyone is different and has to take the path that speaks to them and makes them feel secure.
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I've finished month 1 of the first level of the Wahl Protocol and can't believe how addicted I am to gluten/wheat! It has been a constant struggle to avoid it (which only makes me want it more ).
I read once that what you crave/are addicted to, is what's causing your troubles, so clearly I have some work to do! I made some delicious rice flour muffins today, and I'm making adjustments to the protein I'm eating every day, so let's see how this goes in month 2!
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Wahls featured on the Beast
http://www.thedailybeast.com/article...rrelevant.html
I don't think this sensationalist headline does her any favors, and I don't think that because she's a doctor=magic bullet (Zamboni was a doctor). I found I cut a lot of breads and starches because things move along better so to speak without them. I also avoid IBS-type symptoms (I get with alcohol too). The price of the book also makes me wonder how devoted she is to helping her fellow MS sufferers. However, I always ate relatively well, and, MS.
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Originally posted by jjeich View PostDr. Wahl has never said this protocol was a cure. She makes it very clear she is not cured. For her, it has slowed the progression and made her more mobile. The protocol is in clinical trials (proof will be in the outcome, I suppose), and it has worked for her patients, which don't have MS, which is why there are three levels of diet. You determine based on what you are trying to do/heal.
Personally, I would rather make these very restrictive dietary changes than to take pharmaceuticals. Wahl's advocates BOTH, she does not say throw your drugs away and eat your way to health. It seems like a lot of people are angry at her and I don't understand why. If changing her diet, reducing stress and exercising both regularly and via e-stim have worked for her and relieved any of her symptoms, I am happy to hear about it and am willing to try it myself.
We all share what works for us here, so there is no harm in listening what worked for her, and if you can, adopting some of the proctocol in your own life. You are encouraged, in her book, to keep a journal, and if after a month or two, if you see absolutely no improvement, you can always stop. But if it does work, and some of your symptoms subside, then great!
It took decades for many of us to get to where we are, so none of us should expect overnight improvements.
I am a big believer in (try to) fix the root cause of disease, rather than just treating symptoms, so this book and functional medicine theory speak to me. But everyone is different and has to take the path that speaks to them and makes them feel secure.
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My concern with Wahls is that her crappy diet is what put her in the wheel chair.
I have severe mobility issues, guess what, getting rid of gluten, feel much better, can walk further.
Get off processed foods, even more energy and the leg works good.
Add in some exercise and eliminate animals and I feel great, haven't used my cane in over a year.
Would I even come close to saying my diet relieved my MS let alone cure it? no the MS is still there beating the snot out of my nerves, which is very evident on hot days.
Making my body healthier makes it able to deal with the MS.
The biggest problem this planet faces right now is the fact that people are eating "food" not food.
Do not buy anything with any preservatives, do not buy anything with something that cannot be gathered from nature by practices you could do at home.
If you are going to eat meat, make friends with a local farmer, where you can see that your animals are healthy and living the good life.1995-symptoms with no cause
2000-diagnosed with Probable MS.
2000/1-started Avonex
2002-Rebif b/c increasing brain plaques
Nov-13-Tecfidera b/c needle fatigue&sympt
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Keep in mind that Dr. Whals went the estim route b/c her leg muscles had atrophied. If you are still moving around, you have far more muscle mass than she had and you most likely don´t need estim. (I am not a dr. I did read the book.)
I learned the hard way to go the gradual route. I was already GF and dairy free and almost soy free with little sugar in my diet. I went 100% grain free over nite- went into ketosis and drastically altered the pH of my body. The natural candida in my body took off like a rocket- hello infection. So, I am now going back into pH balance and will not completely eliminate grains- my body did NOT like that. I do eat eggs as I have no issue with them. I am at almost zero added sugars and that has helped immensely with almost zero paraesthesia. In dealing with the infection, the dr. told me that the tingling after eating sugar was due to a rush of insulin- guess that ties into diabetic neuropathy. I think that dampening down the inflammation is the key- ask yourself what triggers inflammation. Even if you have a very "clean" diet, there are other processes in MS not based on inflammation that will cause progression. For me the goal is to slow down the disease in hopes of a much more effective intervention before I lose too much myelin and function.
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Someone asked about her diet before developing this protocol, so I just wanted to mention she was vegetarian. Now she includes animal protein, bone broth and organ meats (grass fed if possible).
I have been gluten free for almost two years and also eliminated dairy and eggs before I bought her book in March. I still had constant tingling and numbness in my left foot and if I risked eating eggs, that tingling feeling ran up my left side.
Within a week of being strict with the Wahls protocol my left foot felt normal again. Even though my balance and fatigue are still poor I am making every effort to stick with her guidelines.
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