I was on it for about three months and it worked great! I still had fatigue but it wasn't debilitating. Then a few weeks ago I started getting VERY weak and unbalanced. I thought I was progressing again. One week I was able to walk 200 metres with my rollator without too much difficulty and then a week later, I made it only 25 metres and just couldn't go on -- I was that weak! I also got edema in both feet, not pretty. Oh and my urinary retention got worse"
I read on a few Parkinsons forums that circulatory problems and edema can happen with Amantadine over a period of time, so I stopped taking it about two weeks ago and finally feel like I am coming back up to physical baseline (as crappy as it was, it was way better than the last few weeks).
The edema is subsiding. Only a small bit of swelling left. A few weeks ago they looked like bloated corpse fee and the stretched skin caused bruising! Urinary retention is also a lot better! Anyway, I am getting a full blood workup again soon and going to try Provigil / Modafinal.
Anyone else get horrible symptoms on this?
I read on a few Parkinsons forums that circulatory problems and edema can happen with Amantadine over a period of time, so I stopped taking it about two weeks ago and finally feel like I am coming back up to physical baseline (as crappy as it was, it was way better than the last few weeks).
The edema is subsiding. Only a small bit of swelling left. A few weeks ago they looked like bloated corpse fee and the stretched skin caused bruising! Urinary retention is also a lot better! Anyway, I am getting a full blood workup again soon and going to try Provigil / Modafinal.
Anyone else get horrible symptoms on this?
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