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    Time for Ty

    My doctor took me off Rebif in October after yet another relapse. Tysabri came up in the conversation, he sent me to an MS Specialist for a second opinion on treatment options. I cannot express how impressed I was with my Neuro for doing this. The Specialist has also agreed that Tysabri is my best option. I am JC-, yay, now I am waiting for funding.

    This drug scares me. Period. So does the lesion pressing up against the brain stem. Right now, I'm legally blind, I have a walk-aid, but my biggest concern is the esophageal dysphasia and the gastroparesis. Will this effect absorption of the medication? There has been significant weight loss.

    Any replies or advice is greatly appreciated.

    Anna

    #2
    Tysabri has helped many msers in many ways! There is no guarantee. It has the best efficacy of the DMDs.

    I have been on it since 10/2006. I am a very grateful Ty user but, it didn't get rid of my drop foot which was my biggy.

    Best wishes and good luck
    Linda

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      #3
      Anna-It took a very badly placed lesion to get me on TY too.

      The benefits for me outweigh the risks. I am doing exceptionally well on the drug and I am only going on infusion #6.

      I am not a medical professional, but absorption of the medicine should not be an issue. I would think both the Neuros would have known if it was.

      You will be a pro after your first infusion. And I sure hope it reduces or gets rid of that lesion and helps you remit.
      Katie
      "Yep, I have MS, and it does have Me!"
      "My MS is a Journey for One."
      Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

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        #4
        Superstitious

        Thank you for all the positive replies, but I'm, going crazy. First, I found out that I was approved for funding a week ago but I haven't seen any paperwork to that effect.

        Called Active Source, they tell me that my infusion site is considered out of network, might not have enough funding.

        Called my insurance who just seemed confused but thought it was in network, called the infusion site and was told they are just a department of the hospital and the hospital IS in network. However they have not heard from TOUCH or have an order from my Dr.

        Called the Dr. office and some stupid girl (stupid because I had to repeat myself three times and spell the drug twice and finally I told her to look around the office because there are posters all over the place) she finally came back to tell me the application was faxed at the end of January, I asked her to resend it and to have the Dr. send an order to the infusion site. Then I had to explain what an order was.

        I'm beginning to think this is all a sign I shouldn't take the drug!!!!

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          #5
          Hi hobbit, just because there are incompetent people don't let it deter you from what might be best for you. I know it can be so frustrating but, keep in mind you are jcv-

          Good luck
          Linda

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