I have only had two infusions of Tysabri so far. So I KNOW it's early...but any input would be appreciated:
The infusions themselves are in eventful with no side effects...until the next day. Enter in hibernation fatigue for at least three days then a slew of new symptoms. NOT liking this med at all .
I have only met and heard from people that absolutely love Tysabri.
Since this is only the second month, I am willing to try a third to see if it's gets better. However, I am so uncomfortable and nothing seems to help the side effects....
I was on Copaxone for six years with excellent tolerance, and very few new lesions over the years. I did sadly have a significant decline in symptoms and frequent flare ups. The obvious question is, then why would I switch?
I met with a neurologist that specializes in MS, and she was very adamant that I try this med and try to get some QOL improved. This was only one appt , lengthy appt tho, I had with her and she did review all of MRIs, etc.
I've had a neuro that I've been happy with for about 5 years now. No one is perfect but I definitely trust him. He concurred I would be a good candidate for Tysabri.
I am JCV positive but only a smidgen above the level for what defines laboratory positive- doctor isn't concerned with regular testing etc. neither am I.
Last, although I was happy with Copaxone, I switched to this med as a hope that my symptoms would get better and I can get some activity back. But I feel worse now, in a different way so I suppose its a trade off. I am grateful for the options and feel guilty that I am so uncomfortable with how sick I feel.
Kinda like, why add more fuel to a fire that is already burning? Is Ty that good that's it's worth trudging through these side effects in a hope they'll go away and I can see improvement from the original symptoms...?
Sorry for long post....bottom line is:
Am I the only one who wants to crawl out of their skin with this med?
Has anyone tried Ty and went back to their previous med?
Has anyone had bad symptoms at forts but then they improved?
Yes, I know it is very early on. I am only posting because I'm uncomfortable enough that I can't find any relief despite efforts to do so. So when all else fails, go to the boards
And PRAY!
Thanks for reading this long, winding post.
Blessings to all of you!
The infusions themselves are in eventful with no side effects...until the next day. Enter in hibernation fatigue for at least three days then a slew of new symptoms. NOT liking this med at all .
I have only met and heard from people that absolutely love Tysabri.
Since this is only the second month, I am willing to try a third to see if it's gets better. However, I am so uncomfortable and nothing seems to help the side effects....
I was on Copaxone for six years with excellent tolerance, and very few new lesions over the years. I did sadly have a significant decline in symptoms and frequent flare ups. The obvious question is, then why would I switch?
I met with a neurologist that specializes in MS, and she was very adamant that I try this med and try to get some QOL improved. This was only one appt , lengthy appt tho, I had with her and she did review all of MRIs, etc.
I've had a neuro that I've been happy with for about 5 years now. No one is perfect but I definitely trust him. He concurred I would be a good candidate for Tysabri.
I am JCV positive but only a smidgen above the level for what defines laboratory positive- doctor isn't concerned with regular testing etc. neither am I.
Last, although I was happy with Copaxone, I switched to this med as a hope that my symptoms would get better and I can get some activity back. But I feel worse now, in a different way so I suppose its a trade off. I am grateful for the options and feel guilty that I am so uncomfortable with how sick I feel.
Kinda like, why add more fuel to a fire that is already burning? Is Ty that good that's it's worth trudging through these side effects in a hope they'll go away and I can see improvement from the original symptoms...?
Sorry for long post....bottom line is:
Am I the only one who wants to crawl out of their skin with this med?
Has anyone tried Ty and went back to their previous med?
Has anyone had bad symptoms at forts but then they improved?
Yes, I know it is very early on. I am only posting because I'm uncomfortable enough that I can't find any relief despite efforts to do so. So when all else fails, go to the boards
And PRAY!
Thanks for reading this long, winding post.
Blessings to all of you!
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