I will definitely keep you updated as I go along this new path. Thanks again for your reply and your messages.
Again, to anyone who is reading this:
I am not saying that Tysabri is a bad choice.
It just turned out to be me more of a nightmare for me between when I stopped it with this "rebound effect" and especially now that I know I have cirrhosis (not caused by alcohol) which means irreversible liver damage (and also knowing that right now a liver transplant for me isn't an option at the only transplant center within a few hours of where I live).
My titer for the JCV+ was very low at .25 so those low numbers didn't seem to do much for me with everything that's going on now.
I did very well on Tysabri for the almost 5 years while I was taking it. There were virtually no relapses, my symptoms were under control with meds, and there was very little disease progression.
Be well,
Julie
Again, to anyone who is reading this:
I am not saying that Tysabri is a bad choice.
It just turned out to be me more of a nightmare for me between when I stopped it with this "rebound effect" and especially now that I know I have cirrhosis (not caused by alcohol) which means irreversible liver damage (and also knowing that right now a liver transplant for me isn't an option at the only transplant center within a few hours of where I live).
My titer for the JCV+ was very low at .25 so those low numbers didn't seem to do much for me with everything that's going on now.
I did very well on Tysabri for the almost 5 years while I was taking it. There were virtually no relapses, my symptoms were under control with meds, and there was very little disease progression.
Be well,
Julie
Comment