Hi I live in Fenelon Falls, ON. It is a very small town in Ontario, which is just a big cottage town. I have lived here for 20 years now. I love it here it is so quiet and peaceful after living on Toronto for many years. My neuro is Dr Crisp and he is excellent.Would love to hear from people around my area and other people of course. I have been diagnosed with PPMS Which has been one *** of a trip and not the smoothest.
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Where is Fenelon Falls?
Hi I live in Fenelon Falls, ON. It is a very small town in Ontario, which is just a big cottage town. I have lived here for 20 years now. I love it here it is so quiet and peaceful after living on Toronto for many years. My neuro is Dr Crisp and he is excellent.Would love to hear from people around my area and other people of course. I have been diagnosed with PPMS Which has been one *** of a trip and not the smoothest.Tags: None
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Hi.
[QUOTE=misslux;1433998]Hi! I had a friend years ago from Fenelon Falls.
I'm also from Toronto and have PPMS.[/QUOTE]
Hi I used to live on Toronto also,but got the hell out of there in 1989 and started living in Fenelon Falls, does your friend still live here? How old are you, and how long have you had ms? What are your feelings about ppms tell me how you feel and the symptoms that you are battling. Would love to hear from you so that we can talk and compare the crap that we are going through.
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Hi! I'm 39 and grew up here but lived in the US for 5 years (moved back last summer). I was misdiagnosed with a CIS (clinically isolated syndrome) in 2009 with symptoms going back probably a year or two before that. Was officially diagnosed with PPMS last year in December. You have no idea how good it is to be back on OHIP!
I have hemiparesis on my right side plus overall weakness, spasticity, neuropathic pain, fatigue, pins and needles in my hands all the time, sometimes the MS hug, foot drop, reduced function in my right arm and hand... the list goes on really. You can see the symptom management meds in my signature.
I'm not sure how I feel about PPMS. I would *hate* to be in constant fear of flares like with RRMS. But on the other hand, there isn't much research or treatment for PPMS. My EDSS is 6.0 and I can only hope it doesn't get worse, but it probably will.
As for my friend, no, he moved to Toronto from Fenelon Falls and last I heard he is still here.
How are you doing with your PPMS?
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Fenelon Falls
Hi there I know that it took me a while to get back and I am sorry for that. But I am back my ms is getting worse I had a new mri and it really sucked big time. Oh well nothing you can do about it.But have more lesions on brain and on spine also I am getting a lot more weaker. I don't know if the specialist will change me from copaxne to something else. But I wonder if the copaxane is stopping lesions and some it cant stop it only can prevent so much
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