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    Hello,
    I am new to this site so will most likely mess things up but I do need some input on aubagio from those in "the Know." I am currently on rebif--have been on avonex and copaxone in the past. Want to try something without needles but am afraid of the side affects. I already have shortness of breath and thin hair, so would love to hear from those taking this now.
    Thanks.

    #2
    Hi DT

    Welcome! Hope you find the info you need.... Take care
    Susan......... Beta Babe since 1994....I did improve "What you see depends on where you're standing" from American Prayer by Dave Stewart

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      #3
      Have taken Aubagio for 9 months

      I have taken Aubagio for 9 months now. I too had thin hair but though I lost some it has stopped and is not too noticeable. I have long hair and I know my ponytail is thinner but that is the worst of it.

      I have had no other side effects. I just had a follow up MRI and nothing has changed.

      That is my experience with Aubagio but everyone is different. If you try it I hope with all my heart it works for you. I never had to do needles and I am so grateful for that.

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        #4
        replies

        Thank You to those who replied to my question I am 80% sure that I will try this new medicine. I am still slightly apprehensive about it but I can always go back to Rebif, at least I'm not allergic to it--I'm just sick of being a pin cushion. I have been stuck with needles almost 12 years now.

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          #5
          Hi,
          I have been on Aubagio, going on 6mo. Blood work is done before starting and then once a month for 6 mo. I have one more month that I need to go in for blood work.

          So far I have had some hair thinning. It's tapering off. I usually have to have my hair thinned out when I have a haircut so next week when I get my haircut I have to tell the stylist that I won't need that done. Otherwise I have no other side affects from the Aubagio.

          Good luck to you if you decide to go on Aubagio.

          Comment


            #6
            Rebif to Aubagio.

            I have been on Aubagio for 3 months. The only other MS med I had been on was Rebif, for 9 years. I was reluctant to change also. I had done well on Rebif, but slowly was feeling worse; many headaches (which I had prior to MS diagnosis), and having to push myself everyday to go to work. Every day became a struggle. I am so glad I made the change. I feel so much better. I think that a lot of the lousy way that I felt was not MS, but was Rebif. I had GI issues prior to Aubagio and that has gotten worse, but I can still function. Also, my blood pressure has gone up since Aubagio. I was already on BP meds, but have increased the dosage and doing better. The increase in the BP meds, which is also prescribed as a preventative for headaches/migraines, has helped with the headaches tremendously. So far, my blood work has been fine. I feel great and am so glad that I made the change. Good luck on your decision.
            MS diagnosis 10/2003. Rebif 04/2004 - 08/2013. Aubagio 08/2013 - Present. Also have chronic glaucoma.

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