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    Meds for frequency/urgency

    Anyone else on meds for these? If so, what are you on and how well does it work for you?

    I tried Detrol LA a few years ago but it didn't work well. I tried Vesicare then and it worked a lot better but over time I seemed to experience diminished effectiveness, even after we doubled the dose.

    I then tried Gelnique, and hated it. It didn't seem to work that well and the amount of gel you have to apply and the area you can apply it to ... I either had to stand around undressed for 20+ minutes waiting for it to dry, or got it all over my clothes. Blech.

    I'm now trying the oxybutynin (sp?) patch but the ins co keeps denying it and saying they want me to take Vesicare or Gelnique. Still making calls to my pharmacy and dr's office trying to figure out if there's any way we can get it approved or I need to go back to Vesicare.

    Can anyone relate? Or anyone have better luck with a different drug I haven't tried yet?
    2001: 1st 2 relapses, "probable MS." 2007: 3rd relapse. Dx of RRMS confirmed by MS specialist. Started Cpx. (Off Cpx Feb 08-Mar 09 to start a family; twins!) Dec '09: Started Beta. Oct '13: Started Tecfidera. May '15: Considering Gilenya.

    #2
    I recently heard on the Katie show that the patch was going to be available over the counter. I wonder why they are releasing the patch over the counter and not the pill form? Maybe this release is why you are having trouble with insurance covering it.

    When they put some of the allergy meds over the counter (Allegra, etc.) my insurance would no longer cover them.

    I have never tried any of these meds, but thought I might when this one is available OTC.

    Comment


      #3
      Vesicare didn't work for me. I just started Mybetriq about 2 weeks ago (I think). It is a different class of OAB medication. It takes a few weeks to be effective so I haven't noticed a change yet.

      http://www.myrbetriq.com/

      Comment


        #4
        Overactive bladder

        I have both urgency and hesitancy so the drug I've been trying out for a couple of months is Flomax (I'm a woman). It is a drug normally given to men for prostate troubles. It has helped me especially the hesitancy. I do cath 2 x a day but at least during the day I can void when I have the urge. I still need to void often but has most definitely improved my quality of life. Dr's and pharmacists do look at me weird for being a woman taking a man drug. Oh well.

        Comment


          #5
          Rapaflo

          Anyone taking Rapaflo for urine retention, frequency, urgency? If so, has it helped? any side effects?

          My urologist just prescribed it -- he said it is a relatively new medication; stronger and more potent than Flomax; and he has been having success with it for MS patients.

          Since I am a woman, and the literature says it is for men with enlarged prostates, when I went to fill the prescription the insurance company denied it. All that was needed was for the dr to call the insurance co and let them know why he prescribed it for a woman.
          PPMS: Dx 9/13 by local neurologist; confirmed by 2 ms specialists in fall/winter 2013-14.
          Meds: Rapaflo, Neurontin, multi-vitamin, calcium, baby aspirin, blood pressure medicine. The list keeps increasing as the neuro tackles each symptom.

          Comment


            #6
            Ditropan for neurogenic bladder

            I had frequency and urgency a few years ago. I was given Ditropan and it worked very well for me, and with no side effects. But eventually I needed to use a catheter, and have been cathing ever since. (It's not a problem.)

            Comment


              #7
              Botox treatments to the bladder have been shown very effective for incontinence/leaking.
              Jodi
              "If you don't like something, change it. If you can't change it, change your attitude". Maya Angelou

              Comment


                #8
                for frequency issue

                Originally posted by hope32 View Post
                Anyone else on meds for these? If so, what are you on and how well does it work for you?

                I tried Detrol LA a few years ago but it didn't work well. I tried Vesicare then and it worked a lot better but over time I seemed to experience diminished effectiveness, even after we doubled the dose.

                I then tried Gelnique, and hated it. It didn't seem to work that well and the amount of gel you have to apply and the area you can apply it to ... I either had to stand around undressed for 20+ minutes waiting for it to dry, or got it all over my clothes. Blech.

                I'm now trying the oxybutynin (sp?) patch but the ins co keeps denying it and saying they want me to take Vesicare or Gelnique. Still making calls to my pharmacy and dr's office trying to figure out if there's any way we can get it approved or I need to go back to Vesicare.

                Can anyone relate? Or anyone have better luck with a different drug I haven't tried yet?
                Hi hope32: hey I am just seeing your message. I wonder if you found something? I have used oxybutinin but it did nothing. Then I tried sanctura and that has been helping. instead of 7 times a night it's now 2 times a night. I can handle that. You might want to try if you haven't. I hope this is helpful.
                thanks

                Comment


                  #9
                  Two things that helped me a lot:

                  1. I cut way back on diet pop, especially after 5 pm.
                  2. I take a magnesium/calcium supplement twice a day.

                  Doing these two things made a noticeable difference in 2 days.

                  My MS specialist Rx Oxybutynin. Didn't help a bit.

                  ~ Faith
                  ~ Faith
                  MSWorld Volunteer -- Moderator since JUN2012
                  (now a Mimibug)

                  Symptoms began in JAN02
                  - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                  - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                  .

                  - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                  - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                  Comment


                    #10
                    I take Myrbetriq. It works pretty well, unless I forget for a day or two, in which case that day or two catches up for a day or two, LOL!

                    I still find, however, that when I drink coffee or any caffeinated beverages, wine (the worst!), or carbonated beverages, I still have urgency issues though not nearly as bad as when I was not on it. They are the usual culprits.

                    I had gone to a physical therapist about this upon advice of my urologist. She put me on an e-stim, which is a vaginal stimulator (don't think vibrator!!) that teaches the muscles to respond effectively again. That worked awesome. If I did it continually over time, I bet I would no longer have an issue. But Mybetriq works, and life is busy. {sigh}

                    BTW, my neuro thought this didn't have anything to do with my MS, FWIW.

                    Comment


                      #11
                      I gave up on the drugs, but drink according to where I have to go. Like I skip coffee if no toilets are going to be handy and I will stop drinking two hours before going anywhere with few toilet opportunities.

                      Comment

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