Announcement

Collapse
No announcement yet.

strange sensations

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    strange sensations

    I've been experiencing some strange sensations that I'm not sure I can describe very well, but here goes.

    I've had a non-stop headache for the past few months. (that's not the part that's difficult to describe!) Sometimes it backs off a bit, and sometimes it's so acute that every little sound that enters my ears feels like it reverberates all over the inside of my head.

    During this same period of time I've experienced continuous waves of these strange sensations in many parts of my body but usually in my head, arms and torso, hardly ever in my lower body. It feels like billions of nerves responding to reverberations caused by noise, me talking, sometimes even breathing.

    Sometimes this sensation really magnifies my tinnitus to the point where it's difficult to focus on what someone is saying.

    These waves of sensation sometimes occur as frequently as every other second, sometimes no more than a dozen or so times a minute. So you can see that the frequency rate is pretty high. For that reason, I'm very thankful that this sensation isn't painful, just extremely distracting. The headache is bad enough!

    Has anybody else ever had this type of sensation?
    "He is no fool who gives what he cannot keep to gain what he cannot lose." - Jim Elliot

    RRMS, dx May 2013, on Gilenya from May '13 - Aug. 14
    Currently following Dr. Jelinek's OMS (Overcoming MS) plan

    #2
    Vibrations

    Hello,

    I don't know the name of what we are experiencing, but it's bothersome for me all day...every day.

    My vibrations are on the left side of my head with no explanation for the cause of it. Three different test were conducted to include tunning forks and MRIs. So, I have just been living with it for the last seventeen years.

    Tinnitus suffer also.

    Good luck,
    Scope
    Dx PPMS since 5/2010

    Comment


      #3
      I’ve had what I’d describe as buzzing sensations a few times. What you are describing sounds a lot more extreme than what I deal with. I agree that a sensation that comes and goes like that is very distracting and annoying. I had one day where the top of one of my thighs kept buzzing, and I wished I could trade it for going numb from the hips down again. At least that was consistent so I could pretty much ignore it.
      Oddly I also find that I sometimes get goose bumps over my entire body for no reason. Not sure if what you’re feeling might be related to something like that.
      dx: RRMS 8/2010; rx: Tecfidera 2/2016; Copaxone 8/2010

      Comment


        #4
        Sometimes I'l get a feeling in my foot like I'm stepping on a vibrating cell phone. No pain, and it's gone quickly and happens rarely. May be nothing, but now that i know i have MS, every weird sensation freaks me out.
        I get tinnitus too once in a while, starts quite loud and fades away within a minute or so. That's probably from way too many loud heavy metal concerts my entire life
        No sir, I don't like it.
        Diagnosed August 30, 2013.

        Comment


          #5
          I get weird vibrations too that come and go in various places but usually my hands and feet. I just roll with the punches and chalk it up to lesions, etc.

          Comment


            #6
            Paresthesia

            Paresthesia is what we are experiencing. I try to explain it to people and most of the time they gasp at how annoying it can be. For me it's as if my body is a bell that has been struck and won't stop vibrating. It was the worst during my first attack. From January untill a month ago I had no issues and everything was normal. Then 3 weeks ago a wave of numbness from my waste down came over me. Than that old familiar vibration that comes in waves, over and over, so annoying! Followed with what I call floating dead spots that move daily and we're ever they are, are the numbest. Just today my left foot started hurting like I stumped the whole thing... Luke when you stub ur finger... Then the feeling as if my hands and feet are so wet there prunes... But yet there dry.. The joys of MS! I feel ya
            James Coleman, 32. Married to the best wife ever. Diagnosed RRMS December 22, 2011. Rebif since Jan , 2012.

            Comment


              #7
              Buzzing

              I am so glad I bumped into this message board. This is my first post and I am excited to see what you have posted. I tried to describe what I feel from my hips to my toes, in both legs, to my Neuro. I told him that it felt like the pain shimmered inside my legs, it felt like they were vibrating. My friend said like I have cola in my blood vessels. Buzzing is the perfect word! He put me in an MRI, it showed nothing new. I am SPMS. His nurse called me and told me they would see me in 4 months. I told her no, this was hugely painful and we needed to figure this out. I am going in for nerve conduction studies. What do you do for the buzzing and is yours painful?

              Comment


                #8
                My paresthesias or buzzing have never been painful enough that I needed to treat them, but I believe that Neurontin (gabapentin) is commonly prescribed for this kind of pain.
                dx: RRMS 8/2010; rx: Tecfidera 2/2016; Copaxone 8/2010

                Comment


                  #9
                  yep, Neurontin

                  One of the doctors that I saw this past August (when I see my neuro, if there's any special symptoms she sends me to a specialist in that particular area) prescribed Neurontin, one 100 mg. capsule before bed each evening. I couldn't tell any difference in the paresthesia, maybe because I took it just before I went to bed or maybe because it was too small of a dose.

                  About a week ago I ran out of the rx, and about a day later the tingling/ringing/waves came on with a vengeance! So I guess it really was helping. I'm now trying to get a refill, because it's not only painful, but it's a huge distraction when I'm trying to concentrate on something, like work!
                  "He is no fool who gives what he cannot keep to gain what he cannot lose." - Jim Elliot

                  RRMS, dx May 2013, on Gilenya from May '13 - Aug. 14
                  Currently following Dr. Jelinek's OMS (Overcoming MS) plan

                  Comment


                    #10
                    Gabapentin

                    I am already on 1500mg a day. My legs have hurt for as long as I can remember. Maybe the buzzing makes the leg pain I already had worse?

                    Comment


                      #11
                      Buzzing

                      Hi SDQuilter,

                      Welcome to MSWorld, glad to see that you are here but we are sorry for the reason. Great bunch of people here that end up being friends and feel like family

                      Buzzing and/or paresthesia is annoying to say the least. I have it in my legs/feet, hands and now in my face on the right side.

                      I also take gabapentin(aka Neurontin). My total dose per day is 1800mg, 300mg x3 twice a day. I did titer down the dose once, with my neuro's help, to see if it was helping.

                      Needless to say... I have to be on it. Only way I can function except for this new sx with the face.

                      At first they thought I had a TIA (mini stroke) but my neuro said no.

                      Testing now for the 5th Cranial Nerve. Chiropractor said he can keep my neck in alignment (I have alot of arthritis) But that unfortunately (sp?) this buzzing (great descriptive word by the way) he can't help me with.
                      So ... its the MS and another thing I have to live with.

                      Sorry to hear that you are suffering this strange and bothersome symptom(sx).

                      Praying for some relief for you, God Bless
                      STR

                      Comment


                        #12
                        Buzzing

                        Thank you, I really appreciate the welcome. MS is a fact of life now. I appreciate the sharing of information. Sometimes I have trouble finding the correct words, it is good to see what others have been able to label their symptoms. I also appreciate the prayer. I have already added you to my list as well. I have started acupuncture, hoping that will decrease the severity of some of the symptoms. At least I feel I am being proactive. I see my Neuro next week.

                        Comment


                          #13
                          lowest effective dose of Neurontin (gabapentin) is usually around 1800mgs per day. I find it to be optimal for me/ would be in unbearable pain otherwise...it can take time to adjust and find a dose or regimen that works. Good luck!
                          RRMS 2011, Copaxone 2011-2013, Tecfidera 2013-current

                          Comment


                            #14
                            Thank you, KateA2. It has taken me a while to work my way up to 1500mg, it controlled the pain until the buzzing started. I started acupuncture Monday and have had 3 sessions. My pain is decreasing and the spastic pain is better. I see my Neuro next week to talk about Neurotin and starting me on a different med, too. I sure appreicate all of you.

                            Comment

                            Working...
                            X