For me the worst symptom.

[Beccah0206]

I'm still stuck in limbo land, though its offs own choosing since a former neuro ticked me off telling me nothing was wrong while handing me a scrip for neurontin for my supposedly imaginary symptoms. He then wrote in my records "probable multiple sclerosis".

Fast forward to 2013 where I start getting new and disturbing and/or very painful symptoms with my annual relapse. The worst being spasms in my foot, hand and leg. Pain doc referred me to ms specialist 6 months ago and my appointment is finally soon. I'm in my second flare. Waking up to these spasms which lessen but continue through the day sucks. Walking through Walmart or at work and they suddenly common sucks. That and the heavy legs and cognitive stuff I'd making work, and life, hard. Ugh. Hoping for final answers soon...and some steroids which I'm used to having for flares but pai doc won't RX because she doesn't want y symptoms masked.

[newbie but goodie]

I guess that;s one good thing about a Dx is that my doctors feel free to mask away!

I agree though, spasticity is a really rotten symptom. I have i in my neck so bad and in my urinary system. There are some meds that help a little but darn it they don't make me a zombie.

Sorry you are struggling with it. I hope you can get a final answer soon

[Beccah0206]

Hmm, I didn't proofread..lol

I can tell my boss came in and disturbed my lunch from all the typos in my post. I was in a hurry to get back to the unit on time.

I got the probable ms DX probably 8 years ago but because of what I mentioned above, and the fact that it seemed mild I didn't stress it much.

I go to a pain clinic for chronic back and neck issues. I refuse to take benzodiazepines and narcotics so all I do for my chronic issues are spine injections every 4 months, ultram and zanaflex. I'm glad I have the zanaflex but I can't take but 1 mg at work because I'm a nurse and have to be on my game at work. The cog things like word recall problems and difficulty with attn are bad enough without adding a drug indiced spa invests to it. 1 mg doesn't cut it but helps enough to go on.

My doc there is the one sending me to the neuro. It was have been Dr. Melanson at Waddell Center who is an MS specialist but she left the practice. Apparently the neuro I will be seeing is highly recommended so I'm not quite so worried about my upcoming appointment.

It's my second flare in 4 monts and never before Hae I had two that close.

[Lonilee]

I'm so sorry

I'm having it in my right hand it is really bad and frustrating I'm so sorry increase ur potassium as well I heard this may help if low- baclofen also a great helper

[Strhuntrss]

toes and leg goes crazy

I had my toes and leg going crazy the other night.

My left leg went spastic on me. The toes curled up first, thought it was a cramp. Next thing I know my leg went into a bent position like sitting and I couldn't straighten it. Then the most aweful pain went from my foot traveled up the inner thigh to my groin.

I was stuck. hubby tried to help but couldn't straighten the leg out.

Leg wouldn't even go down on the ground. He got me into the bedroom where I laid on my side until it subsided.

It was the first time it was that bad.

Any one else have this happen?

[Fed Up]

Beccah, shame on you for not following up with the "probable MS" diagnosis. The only person you can fault, is yourself.

I too, went thru the physical things you are and even submitted to fake knees and back surgerie...all the pills and epidurals with steroids.

I was diagnosed with Fibro and they were treating that and never suspected MS.

It is sad you have to wait so long thru this to get a Dx.

Personally, without a dx and new onset of symptoms...you need to go see your primary or the ER and have someone 'steering' you thru this mess.

it is my opinon, that I AM THE LEAST reliable person to make the best medical decisions for myself. I rely on my primary and ER. When in doubt, I just go in. Safe is always better than sorry.

Truthfully, the meds you've been given should manage plenty of symptoms and appropriate, until you see the right docs and STICK WITH THEM, Unless the folks here tell you to swithc.

WE with MS, are NOT exactly making the best decsisions on our care ..COG FOG HERE and taking no chance's to disminss ANYTHING to MS, until it is totally PROVEN! Even with my dx, I go to ER for everything, NOW..especially because of my dx!

Hope that helps you a bit. Not trying to be hard on you, but you seemed to get in your own way, after a "probable Ms" dx. So sorry; fed