I recently had to come off Tysabri after 18 doses because I developed antibodies against it. Bummer. But, after a lot of discussion with my neuro, we decided Betaseron would be a good option for me. Well, I got my shipment today, and I gave myself my first injection, using the video with Ms. Not An Actual Patient and the downloadable stuff. But she keeps referencing my training guide and the mat and all the diary, etc. Now, when I was on Avonex, I was contacted by a nurse, I got training materials, and all that. BetaPlus told me I was on their 0 copay program, but that's it. Am I supposed to hunt down the training materials myself? Is there something wrong with this picture? I'm confident in my ability to inject myself (I have experience with this kind of thing), but somehow I feel like BetaPlus should have made some kind of effort to contact me.
Anyway, just wondering if my expectations are realistic. Kind of feel out there on my own right now.
Thanks.
Anyway, just wondering if my expectations are realistic. Kind of feel out there on my own right now.
Thanks.
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