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Vitamin D

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    #16
    I took that amount when my levels were low and we had to being them back up. No issues.

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      #17
      Originally posted by LindaT5761 View Post
      My neuro has just rx'd this, but i have not picked up the rx yet. My d level very low by blood test. Has anyone had trouble with this dose? Thanks.

      I'm on the same dose. Have been for two years now. Never had a problem. I take it at night with a few others (as my doctor never wants me taking it close to my thyroid med) and it's never been an issue. ^_^
      Dx RR MS - April 1st, 2010. (19 yrs old)
      Words To Live By: "Fall Seven Times; Stand Up Eight."

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        #18
        I just got prescribed 50000IU once per week. No issues thus far.

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          #19
          Yes to vitamin D

          Originally posted by rsinger View Post
          Anyone taking Vitamin D. I understand that it could be helpful. I think you can safely take 5,000-10,000 IU daily.
          My doctor recommed I take 4000 IU daily. He also does a blood test once a year to see what my level is.

          Dr Oz said the other day on his show that taking 600IV a day was important along with a daily mult-vitamin cut in half. Half with breakfast and half with supper.

          Toot
          toot

          DX 1986 currently on TY
          Copaxone 2003 to February 2015

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            #20
            Vitamin D levels!

            When my neuro first tested me, my level was 6, ( said lowest he had ever seen ) he wanted me on 5000 IU 2 x's daily. Couldn't do it! Spend most of my time with my head in the toilet! So he cut me down to 2000 IU 2 x's daily. After 3 months, my levels were at 17, he wanted me up to 35, because I needed calcium supplement's due to ostioporosis problems. Low D levels can cause calcium build up, ( kidney stones ) so no calcium until D levels rise. NP wasn't worried able D levels, would not test, and tried to put me on calcium supplement. Called neuro, he said no, D levels must be up, or I could have way more problems. Was tested in Oct. been on the D3 for over 2.5 years now, my levels were still only at 28. So make sure you get tested, more so if you're over 50 ( I am ) and post meno.
            C-clumsy J-Jan thatsme
            SPMS 10-07 Copaxone 10-08 to 12-09
            LDN 4-12-10

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              #21
              I take 10,000iu per day. I do not take a calcium supplement. With adequate Vitamin D, you don't need to add extra calcium to your diet, but ask your doctor.

              As for levels, I keep mine around 100. You can read from a major MS center that recommends that level. You can also search for studies which show higher levels of VitaminD promote fewer relapses.

              http://www.swedish.org/services/neur...ent-info-sheet

              Vitamin D3 which you can buy at the drug store is better than the one the doctor prescribes. It's more readily absorbed and cheaper.

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                #22
                You all NEED to research Dr Cicero in Brazil. He has achieved impressive things in MS patients with.high doses.of vitamin D.

                do not expect any.of.the big pharma to u investigate cheap vitamins (actually vit d is a hormone). that isnt where the money is for them. weve known for years vitamin d levels and latitudes are involved in MS probability. finally the medical community is slowly coming round to it...

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                  #23
                  I just watched a video recommending that if you have MS your children should have their vitamin d levels check and take supplements if they are low. I think that's a good idea. They don't need any more risk of getting this dreaded disease. My neuro wants my level about 60. I was 11 at my last major relapse. Took 40000 once a week for 4 weeks and now 2000 daily. Last level was in 50s.

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                    #24
                    My whole family gets it. Please do not rely on the small amount added to milk to protect you or your kids. Do the research.

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                      #25
                      Flushing it away

                      You need to increase your magnesium if you want your body to absorb the D.

                      Look for magnesium glycinate, the magnesium you buy from walmart is very poorly absorbed.
                      1995-symptoms with no cause
                      2000-diagnosed with Probable MS.
                      2000/1-started Avonex
                      2002-Rebif b/c increasing brain plaques
                      Nov-13-Tecfidera b/c needle fatigue&sympt

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                        #26
                        Research out of Chicago suggests levels of 110 for individuals with MS....(somewhere previously I referenced that).

                        And remember clinicians are 15-20 years behind research.

                        I have auto-immune patients in the 110-140 range for vit D.
                        Rheumatoid arthritis, MS, Lupus, also for/during Shingles, I have patients take 25,000/day of vit D.

                        ALL with NO Problems.

                        vit D acts a modulator in the immune system - it will up-regulate a weak system and dampen an overactive system.

                        I prefer liquid form as it is a 'fat' and to heat and dry a fat (and put it in a capsule or tablet) would destroy important properties....
                        NutritionTara
                        Eat better, feel better and be richer for it.

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                          #27
                          Fully agree with Tara. I really think MSers need to be in those ranges. Even those on interferonz should research studies done on use of interferon+vitamin D by big pharma to prove a reduction in relapses. ..and then should question whether its the interferon ot vitamin D thats effective.

                          Magnesium and zinc are also important for vitamin D uptake.

                          Tara- will look.into the liquud form of vitamin D. How exactly would you recommend taking it? mixed in oil?

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                            #28
                            Anecdotal, but upping my levels from 22 to 60 radically changed the intensity of my flares in a good way. I see an MS specialist next week as a new patient, and will definitely be asking about this, as he is known for not being a stick in the mud.

                            My first neuro was completely unconcerned for 2 years about my low level, even though upping it was not at all dangerous. I got my allergist to help me monitor and raise it in the meantime, and then all of a sudden, it was a big deal to the neuro. I get that they don't want to make recommendations without enough data, but it's not like I was asking for something bizarre or dangerous or even all that unresearched.

                            Anyhow, thanks for this thread. I currently take 4800IU/day; I may up that to 6800 so long as I am being monitored as it sounds like I am nowhere near the danger line.

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                              #29
                              10k IUs is recommended minimum for MSers. there is evidence that those with MS dont synthesize or used vitamin d properly and so greater doses may be necessary. But seriously 10k is perfectly safe.

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                                #30
                                D3 is not a one size fits all proposition, even in MS, and not every MSer needs 10k in supplementation (though some need much more!). The only real way to know is to have blood levels monitored and have dosages altered based on actual data. It may be hard to overdose on it, but it doesn't mean it can't be done.

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