I am 41 years old, married 21 years and have a senior in high school and a sophomore in college . I was diagnosed in Nov. 2007 with RR MS. What's crazy, is when I had the first tingling, I was 12' in the air, painting our house! My main complaint was random numbness and tingling and severe fatigue. I have a history or Transverse Myelitis when I was 11 years old which they now say could have been an initial onset of MS.
Right away, the Dr wanted to start me on Rebif. So being newly diagnosed and scared that my very active life would change drastically if I didn't I agreed. Needless to say after 5 years of feeling like crap, I went off of it. At first it was very mild flu symptoms for like 2 years. I just made sure I took my shot right after dinner and slept through most of the side effects. Then slowly over the next 2 years they crept into my whole next day! I was miserable. I was having more bad days then good. Even though I toughed it out and made myself do a lot of daily activities, I was utterly exhausted every day!
SO....November, 5 years after starting it, I quit. Maybe it will come to haunt me in the future, maybe it won't....All I know, is that I have felt better then ever. I still have the original numbness, tingling and fatigue. But the fatigue comes and goes with humidity and stress. Normally a 20 minute complete relaxation in an easy chair is enough to get back enough energy to make it through the day.
I don't want to say this will work for everyone, because each case is unique, this is just what works for me
Right away, the Dr wanted to start me on Rebif. So being newly diagnosed and scared that my very active life would change drastically if I didn't I agreed. Needless to say after 5 years of feeling like crap, I went off of it. At first it was very mild flu symptoms for like 2 years. I just made sure I took my shot right after dinner and slept through most of the side effects. Then slowly over the next 2 years they crept into my whole next day! I was miserable. I was having more bad days then good. Even though I toughed it out and made myself do a lot of daily activities, I was utterly exhausted every day!
SO....November, 5 years after starting it, I quit. Maybe it will come to haunt me in the future, maybe it won't....All I know, is that I have felt better then ever. I still have the original numbness, tingling and fatigue. But the fatigue comes and goes with humidity and stress. Normally a 20 minute complete relaxation in an easy chair is enough to get back enough energy to make it through the day.
I don't want to say this will work for everyone, because each case is unique, this is just what works for me
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