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    Sarcoidosis

    Some 25 years ago I received a dx of possible MS then 15 years ago probable and then MS and 9 years ago SPMS.

    2 years ago I had a pulmonary embolism and 3 months later another. These embolisms led to the dx of invasive breast cancer.

    In this time I have had multiple chest x rays, CT scans, PET scans.

    Now my neurologist at The Cleveland Clinic here in Vegas believes I have multiple organ Sarcoidosis instead of MS.
    I have granulomas on my lung, adrenal glands, brain, spine and am in congestive heart failure.
    Sarcoidosis mimics many sxs of MS but actually attacks the organs.

    This is the journey I am on now.
    I have missed many of you but am not really sure where I belong.

    Gina
    Faith, Hope & Love
    Gina
    MS 1988 SPMS 2005

    #2
    Oh Gina,

    I am so sorry that you were dealt this HORRID "hand".
    Please KNOW you can stick around here and we will CERTAINLY support you the best we can.

    {{{Gina}}}
    Live simply. Love generously. Care deeply. Speak kindly.

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      #3
      Sarcoidosis, once family, always family! You aren't going anywhere.

      Sounds like you have every right to be very VERY angry, right now. Yet, you sound numb and detached. I would be, as well.

      What a devastating ordeal and have them be wrong: 100%...would be nice if, they were still wrong. Guess, that is wishful thinking and high hopes for a cure for you.

      My heart sunk to the ground. Please know, prayers and the best possible outcome is hopefully, coming your way!

      I'll put my email addy in my profile, please send me an E-mail. fed

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        #4
        Thanks fishhead
        When is there ever anyone here?
        Faith, Hope & Love
        Gina
        MS 1988 SPMS 2005

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          #5
          Fed Up,
          Thank you for your kind words and wishes.

          Couldn't find your email...

          When does everyone chat?

          Faith, Hope & Love
          Gina
          MS 1988 SPMS 2005

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            #6
            I haven't been in the chat. I tried to send an email, via your IM yahoo "email" account, it was returned. I'll put my email in profile, now. fed

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