Strange Pain!!!

[apple19]

Hi All,

I have been on Avonex since June 21, 2012. I usually have body aches, tightness and headaches for about 24 hrs.

During the last two injections I have achy, neuralgia type pain that radiates down my left ache. As soon as I inject the medicine in my leg I start feeling the pain in my arm. It last about 10-15 sec but my arm is weak for about 3-4 mins. Then I get my strength back.

I called MS Active Source who had no clue what was going on. I called my MS Specialist, who wants my to be checked for antibodies due to the medicine.

Has anyone had this happened to them?

[apple19]

Well...After talking with Ms Spec. we decided to stay with Avonex for now. She offered to switch me to Tecfidera but I told her I needed to wait. This past week again I had the neuralgia-type pain radiate for my neck down my left arm. I have to make an appointment to have bloodwork done to check for drug-related antibodies which I will do this week.

I check back to give update.

[MallyCT]

Hi Apple

Did you also reach out to Biogen? Their support line is amazing. Best that you followed up with your specialist but the Biogen support folks are great. I have been on Avonex since early 2008 and ahd a tough time in the beginning with side effects, which wore off. Recently, I experienced some of those old side effects again -- aches, etc. I called my neuro and we both agreed to stay the course and this was probably a fluke. Thankfully, it was! I will be starting Tec next week (time to change meds, not a result of the aches/pains recently experienced on the Avonex). Good luck and hang in there!