I've been waiting & watching BG-12/tecfidera for about a year. Was excited about the CONFIRM & DEFINE trial results. Now my day has come and am feeling nervous as heck about my it! Copaxone has done (is doing) it's job (according to my Dr. & the MRI's) but I'm chomping for something more effective.
Anyway, saw Dr. today, she's fine either way and finally encourage me to take the leap as I sat heming & hawing in her office. I'm not crazy about the lack of feedback. All the marketing & trial info look promising but I want to hear from people who have actually been on the drug (trial participants?).
Dr. would like more info from drug company regarding mechanism of drug (science mumbo-jumbo including words Nrf2 & brain shrinkage long term results, and petri-dish testing.) Anyway, my aim is to mimimize the every-increasing and annoying parathesia that is taking over my body.
Regarding insurance, plan is BxBs of KC and for mine it is a tier-3 drug, but since I have already met my big deductible (thankyou Teva patient assistance) it will be covered. Come Jan. 2014, who knows? (another point of anxiety) as the insurance exchanges start rolling out, I hope Biogen will provide continued support (I utilized their patient assistance previously with Avonex - ok program but not as generous as Shared Solutions.) Anyway, this was my vent. Hope that Tecfidera will be good for my brain!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Anyway, saw Dr. today, she's fine either way and finally encourage me to take the leap as I sat heming & hawing in her office. I'm not crazy about the lack of feedback. All the marketing & trial info look promising but I want to hear from people who have actually been on the drug (trial participants?).
Dr. would like more info from drug company regarding mechanism of drug (science mumbo-jumbo including words Nrf2 & brain shrinkage long term results, and petri-dish testing.) Anyway, my aim is to mimimize the every-increasing and annoying parathesia that is taking over my body.
Regarding insurance, plan is BxBs of KC and for mine it is a tier-3 drug, but since I have already met my big deductible (thankyou Teva patient assistance) it will be covered. Come Jan. 2014, who knows? (another point of anxiety) as the insurance exchanges start rolling out, I hope Biogen will provide continued support (I utilized their patient assistance previously with Avonex - ok program but not as generous as Shared Solutions.) Anyway, this was my vent. Hope that Tecfidera will be good for my brain!
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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