I don't dare eat on days when I have to go anywhere, store, doc library etc, I am so mortified when I have bowel incontinence andI'm not at home or even when I am here and PT or OT are here. We know any walking/exercise should get it moving but never when your planning on it. If constipated and take miralax, you still leak as was mentioned in earlier thread. I try so hard to find the right amount of fiber to eat in a day..too much or too little causes this stuff too. I could so easily become a recluse. I'm just hoping against all hope this is one of the transient symptoms that come and go so maybe it'll go away for a while. Oh well I guess it's just one more thing we have to deal with. This is the only horrific and mortifying thing for me. I can laugh off the other stuff.
Announcement
Collapse
No announcement yet.
These IBS symptoms have to be the worst
Collapse
X
-
Tags: None
-
I am right there with you girls. Chronic constipation since I was a little girl. I have has several "accidents" in the past year and of course in the most embarrassing of situations (movie theater, grocery store...). I too am scared about what and when I eat and this issue has kept me from enjoying lots of activities and going out in public.
One minute I am fine, the next not so fine. I have noticed it seems to cycle around my period? In fact, it seems like my MS symptoms are worse in general about once a month. Maybe my imagination. So much of this I am still trying to figure out.
Today I have to take my kids to a birthday party. Of course, I spend the morning worrying about the "what ifs" So frustrating!
Comment
-
My wife suffers with this one. We have put up a bedside potty to work on days when she can't make it to h bathroom or get up off the toilet when I am not at home.
It does last a bit, then goes away. Use depends an keep on keeping on. We try to enjoy life. Who knows how long we have to enjoy it. I know it is an embarrassing thing. But what can you do?
Nobody auditioned to get MS. I tell my wife that often. It is of easy to have, it is not easy to watch.
We pray a lot.
Keep your head up and dignity intact. MS is something bad that happened to a good person.
Comment
-
OMG ME TOO! *blush*
I have had a few accidents (no.2) and luckily I have been alone and at home, 'cept once in the car they are embarrassing. I take loperemide (Immodium) and don't eat when I have to go somewhere. I don't go for like 5 days then I go 1st time normal but messy each time after. I sit there because I know I'll have to go more, but I don't so I get up, pull up jeans, and 5 minutes I am back and the last time I don't usually make it. It's humiliating. I am glad to know there are others out there. I know the loperamide isn't prolly good, but it slows it down. I dunno, anyway just giving my 2cents and thanks for not making me feel alone.RIP Jenna's Beloved Momma
Best MS Support System Ever
7/42 - 12/12
Comment
Comment