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These IBS symptoms have to be the worst

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    These IBS symptoms have to be the worst

    I don't dare eat on days when I have to go anywhere, store, doc library etc, I am so mortified when I have bowel incontinence andI'm not at home or even when I am here and PT or OT are here. We know any walking/exercise should get it moving but never when your planning on it. If constipated and take miralax, you still leak as was mentioned in earlier thread. I try so hard to find the right amount of fiber to eat in a day..too much or too little causes this stuff too. I could so easily become a recluse. I'm just hoping against all hope this is one of the transient symptoms that come and go so maybe it'll go away for a while. Oh well I guess it's just one more thing we have to deal with. This is the only horrific and mortifying thing for me. I can laugh off the other stuff.

    #2
    Cindy,

    Yes, bowel problems are no fun at all. I've been on both sides of the coin, but never both at once like was mentioned in your other thread.Yikes.

    I hope this gets better for you.
    Kimba

    “When you change the way you look at things, the things you look at change.” ― Max Planck

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      #3
      I am right there with you girls. Chronic constipation since I was a little girl. I have has several "accidents" in the past year and of course in the most embarrassing of situations (movie theater, grocery store...). I too am scared about what and when I eat and this issue has kept me from enjoying lots of activities and going out in public.

      One minute I am fine, the next not so fine. I have noticed it seems to cycle around my period? In fact, it seems like my MS symptoms are worse in general about once a month. Maybe my imagination. So much of this I am still trying to figure out.

      Today I have to take my kids to a birthday party. Of course, I spend the morning worrying about the "what ifs" So frustrating!

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        #4
        My wife suffers with this one. We have put up a bedside potty to work on days when she can't make it to h bathroom or get up off the toilet when I am not at home.

        It does last a bit, then goes away. Use depends an keep on keeping on. We try to enjoy life. Who knows how long we have to enjoy it. I know it is an embarrassing thing. But what can you do?

        Nobody auditioned to get MS. I tell my wife that often. It is of easy to have, it is not easy to watch.

        We pray a lot.

        Keep your head up and dignity intact. MS is something bad that happened to a good person.

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          #5
          OMG ME TOO! *blush*

          I have had a few accidents (no.2) and luckily I have been alone and at home, 'cept once in the car they are embarrassing. I take loperemide (Immodium) and don't eat when I have to go somewhere. I don't go for like 5 days then I go 1st time normal but messy each time after. I sit there because I know I'll have to go more, but I don't so I get up, pull up jeans, and 5 minutes I am back and the last time I don't usually make it. It's humiliating. I am glad to know there are others out there. I know the loperamide isn't prolly good, but it slows it down. I dunno, anyway just giving my 2cents and thanks for not making me feel alone.
          RIP Jenna's Beloved Momma
          Best MS Support System Ever
          7/42 - 12/12

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