Hey Im Shawntel! I really hate to put this all out there but I need to vent so if u read it thank you
I first starting having symptoms of MS in May 2007 When I was 23. Went to the Dr in California and they told me it probably was MS. I told my husband and family and they all said no. It was in my head. There's no way. Its just stress... Blah blah blah. So I started thinking the way they did and didnt go back for more testing even tho my best friend encouraged me to.
Still continued to have symptoms (numbness, tingling, fatigue, balance and brain fog) until I moved to Kansas in 2010. I finally decided after 2 weeks of not being able to feel my fingers on my left hand it was time. My Dr. being AMAZING immediately sent me for testing. He had an EMG and MRI done along with a lot of blood work. They found lesions and that my ulnar nerve had damage. Sent me to a neuro in town who was HORRIBLE. He didnt listen, wouldnt answer questions straight.. nothing but after more MRI's and a spinal tap he diagnosed me with RRMS Jan 13th, 2012.
Fast forward to this year. My husband and I are separated, he cheated. I met this guy last year who was awesome. After months and months of talking and him being there for me while I slowly opened up. It was great. My family doesnt like him and he doesnt like them. My family thinks I should work it out with my ex. I dont want to.
Anyway, I have no one to really talk to about this bc no body has taken the initiative to educate themselves, even tho Ive basically begged them. My bf just says he doesnt believe in depression and I choose to be like this and that Im negative all the time. My parents are in denial and my sisters are in their own world. I dont really talk to anyone else in my family.
I dont really know what to do! Any advice on how to get them to educate or at least be empathetic?
I first starting having symptoms of MS in May 2007 When I was 23. Went to the Dr in California and they told me it probably was MS. I told my husband and family and they all said no. It was in my head. There's no way. Its just stress... Blah blah blah. So I started thinking the way they did and didnt go back for more testing even tho my best friend encouraged me to.
Still continued to have symptoms (numbness, tingling, fatigue, balance and brain fog) until I moved to Kansas in 2010. I finally decided after 2 weeks of not being able to feel my fingers on my left hand it was time. My Dr. being AMAZING immediately sent me for testing. He had an EMG and MRI done along with a lot of blood work. They found lesions and that my ulnar nerve had damage. Sent me to a neuro in town who was HORRIBLE. He didnt listen, wouldnt answer questions straight.. nothing but after more MRI's and a spinal tap he diagnosed me with RRMS Jan 13th, 2012.
Fast forward to this year. My husband and I are separated, he cheated. I met this guy last year who was awesome. After months and months of talking and him being there for me while I slowly opened up. It was great. My family doesnt like him and he doesnt like them. My family thinks I should work it out with my ex. I dont want to.
Anyway, I have no one to really talk to about this bc no body has taken the initiative to educate themselves, even tho Ive basically begged them. My bf just says he doesnt believe in depression and I choose to be like this and that Im negative all the time. My parents are in denial and my sisters are in their own world. I dont really talk to anyone else in my family.
I dont really know what to do! Any advice on how to get them to educate or at least be empathetic?
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