My pain at night has increased over the last couple months. Doc started me on ativan at night to help with the spasticity. (I've tried zanaflex and baclofen with nasty side effects.) I am so stiff after laying for a couple hours that sometimes I literally can barely move. Getting out of bed is difficult but once I get moving I usually improve throughout the morning.
I have found that sleeping on my couch, which is thick, soft foam, is a lot more comfortable. It helps to feel supported leaning on the back of the couch. I even slept for 10 hours straight once and wasn't woken up for bladder or pain issues. It was a complete miracle but I can't sleep there forever.
I particularly feel pain at pressure points and toss and turn in the bed all night. I will feel fine and then suddenly I will get shoulder or hip pain (not joint, the meat) that gets bad suddenly and I have to jump up and move around. I have even had to get completely out of bed at night, walk around the house then try to get back in. I take lyrica for back and hip pain that is sharp and it works great for that but not the rest of the pain.
I am thinking that my mattress is making it worse and have decided that I need to break down and get a new bed, although the cost will be more than I want right now. I never buy myself new stuff, everything goes to the kids. I am going to treat it like a piece of medical equipment I am buying to help my MS. (Wonder if it can be written off as a medical expense on my taxes?? humm????) I'm reasoning that if I feel better then I will be a better mom and therefore that will benifit my kids
Ok to the point of my post...I need advice on the best mattresses available to help with the kind of pain we get. I thought about a memory foam mattress but afraid with my stiffness I will find myself stuck on my back, like a turtle flipped over on its shell, unable to get up. Its a funny visual now but when things like that happen for real its not so funny at the moment.
Someone I know recommended a tempur-pedic bed but I don't know much about them. I guess I need to go to a mattress store and lay on a bunch of beds but I hate, hate, hate salesmen and like to have an idea of what I want before I go to a store. The car I last bought was the first one I test drove. I did so much research before hand that I knew exactly what I wanted. Wonder if the salesmen would let me take a nap to test drive the mattresses hehe!
At the same time I am buying myself a cane to help get out of bed in the morning, either that or a side rail to have something to pull with. It crazy, I can't get out of bed but then I get feeling better and go work a 14 hr day as a nurse taking care of others who can't get out of bed. What a crazy, backwards life we have!!
Any and all advice on beds will be appreciated and any other equipment that helps you with this kind of thing.
Thanks everyone!!
I have found that sleeping on my couch, which is thick, soft foam, is a lot more comfortable. It helps to feel supported leaning on the back of the couch. I even slept for 10 hours straight once and wasn't woken up for bladder or pain issues. It was a complete miracle but I can't sleep there forever.
I particularly feel pain at pressure points and toss and turn in the bed all night. I will feel fine and then suddenly I will get shoulder or hip pain (not joint, the meat) that gets bad suddenly and I have to jump up and move around. I have even had to get completely out of bed at night, walk around the house then try to get back in. I take lyrica for back and hip pain that is sharp and it works great for that but not the rest of the pain.
I am thinking that my mattress is making it worse and have decided that I need to break down and get a new bed, although the cost will be more than I want right now. I never buy myself new stuff, everything goes to the kids. I am going to treat it like a piece of medical equipment I am buying to help my MS. (Wonder if it can be written off as a medical expense on my taxes?? humm????) I'm reasoning that if I feel better then I will be a better mom and therefore that will benifit my kids
Ok to the point of my post...I need advice on the best mattresses available to help with the kind of pain we get. I thought about a memory foam mattress but afraid with my stiffness I will find myself stuck on my back, like a turtle flipped over on its shell, unable to get up. Its a funny visual now but when things like that happen for real its not so funny at the moment.
Someone I know recommended a tempur-pedic bed but I don't know much about them. I guess I need to go to a mattress store and lay on a bunch of beds but I hate, hate, hate salesmen and like to have an idea of what I want before I go to a store. The car I last bought was the first one I test drove. I did so much research before hand that I knew exactly what I wanted. Wonder if the salesmen would let me take a nap to test drive the mattresses hehe!
At the same time I am buying myself a cane to help get out of bed in the morning, either that or a side rail to have something to pull with. It crazy, I can't get out of bed but then I get feeling better and go work a 14 hr day as a nurse taking care of others who can't get out of bed. What a crazy, backwards life we have!!
Any and all advice on beds will be appreciated and any other equipment that helps you with this kind of thing.
Thanks everyone!!
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