I would appreciate any advise on NMO. I was dx with MS in 1974, started Betaseron in '94 and that medication basically slowed the progression of the disease. I am legally blind after many bouts of ON. Since moving to CA the neuro here wanted me to take the blood work for NMO, something I never heard about when I lived back East. My antibodies were off the charts so I am being referred to a specialist at UCLA. I think the treatment option that is being considered is daily prednisone and Cellcept. I was told to stop the Beatseron because my last MRI (a few weeks ago) showed active lesions in brain & spine.
Has anyone gone through this? What and how did the specialists determine if you had/have MS or NMO.
Believe me it is hard for me to wrap my head around not having MS after 40 years and being treated for another illness that is so similar but doesn't respond to any of the MS drugs?
I could really use some advise if anyone has any to give.
Thank you
Marilou
Has anyone gone through this? What and how did the specialists determine if you had/have MS or NMO.
Believe me it is hard for me to wrap my head around not having MS after 40 years and being treated for another illness that is so similar but doesn't respond to any of the MS drugs?
I could really use some advise if anyone has any to give.
Thank you
Marilou
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