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    Vitamin D

    Last year was a bad year for me; I had a leg drop, I was in a lot of pain with increased RX, etc. Talking to my Neuro and he was checking my vitamin D levels. I don't get out in the sun much because the heat bothers me. He told me my level was at 40 and it should be higher, so I started taking an additional 5000 iu each day. I already take the 1x a month 50,000 iu which was keeping me at a level of 40.

    So I increased my vitamin D and I can honestly tell you it saved me. I was able to cut back my Neurontin by 2700 mg over 6 months, my leg drop which I was told was perminent - is now FINE! I don't think it will cure me, but I think it made me feel better.

    Talk to your Neuro about increased vitamin D. I checked to see if there was anything about having too much vitamin D - couldn't find one study that said don't do it.

    Happy and healthy trails to all of you!
    Sz

    #2
    Thanks, smgadvisor. I have been ranting about higher vitamin D levels in nearly every post I write. You have confirmed what I believe to be true. Did your doctor try to tell you about the 'dangers' of 'overdosing' ? My PCP did. He thinks trhat a level of 25 to 50 is sufficient. I say 50 to 100 is the right place to be. Where are you, now ?

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      #3
      FWIW, I was at 59 ng/ml at my last test, and my neuro said that is right in the middle of the range he wants me at. These times they are a'changing, and the focus on vitamin D and MS has shifted even in the last year.

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        #4
        I love it. You feel much improved and your vitamin D is at 59ng/mL. The establishment says 25-50. You and I know that is bull. And your improved condition proves my point. And the medical establishment doesn't know where the numbers 'truly' should be. It is perplexing. Good luck

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          #5
          Vit d

          Hi JerryD, you asked where I am now, well my vitamin D is at 80 and my neuro says looks good to him, but my PCP says too high.

          Hmm you think if I OD on vitamin D my life would be any worse than all the pain pills and injections I now live with? I'm so happy to feel good. Going to enjoy it while it lasts.
          Sz

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            #6
            smgadvisor ( and anyone else ),
            Please be sure to weigh in when you truly do overdose on vitamin D, with the actual symptoms of vitamin D overdose and the ng/mL levels/numbers. I am sure my doctor would like to hear the particulars. Good luck

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              #7
              The first time I went to my ms specialist he told me to start taking 3000 ius of vit d a day. I can't be sure if they helped but within a week or two of starting the vitamin d (I hadn't started avonex yet) my symptoms were gone. Then I ran out of vitamin d and didn't pick any more up and I developed symptoms again...I restarted my vitamin d a few days ago so we'll see!

              Also, from what I've read, vit d toxicity is serious but it would take you taking 50000 ius a day for several months...my neuro didn't even check my levels he just told me to start 3000/day

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                #8
                Not testing the levels is a 'big' mistake. Not because of a chance of 'overdose', but because you never know 'formally' where your levels are. It's a simple blood test and it is covered by insurance. Why not do it ? You should know your B-12 and magnesium levels, too. I suggest you get the blood tests regularly.
                I took 200iu's daily for 2 years and my levels barely moved up. I told my doctor that I was going to start 5000iu's daily and then I would test after a few months. The blood tests showed a marked improvement. Then my doctor told me to stay at 5000iu's daily. My levels were tested at 49 ng/mL, last time I checked. I want to be closer to 60 ng/mL. Good luck

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                  #9
                  When I got my vitamin D level up around 70 my fatigue was much better. My PCP has the good sense to stay out of anything to do with my MS because she doesn't know enough about it. I don't think PCPs learn anything new about MS after they get out of medical school, so they're probably not the best source of information about anything having to do with MS and that includes vitamin levels.

                  I have read some articles about MS and vitamin D and they say that the lowest level should be 50 ng/ml to reduce the number of relapses. And remember that's the level, not how much a person should take. We have to take as much vitamin D as we need to keep our levels up there and that's different for everybody. I don't know if I'm getting fewer relapses at 70 but I know I feel much better.

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                    #10
                    Hi,this is my first time on here.My D level is at 26 and needs to be higher.Doing 2000units daily now. But, there are so many things with M.S. that can drag a person down. Too much exercise...not enough exercise. wrong diet..not enough sleep..too much sleep. I've been diagnosed since 8/06, but had it for at lest 5yrs. before that. I'm 54 now,not working.Have foot drop and us a cane when going outside or leave the house. Started out with relapsing remitting ms, changed to primary progressive. Have bladder problems, so I have to cath.myself many times a day. I don't know , the list goes on and on, as you all know. I stay possitive most days..but ya know how that goes to. Just wanted to say hi,and get a start here. I'm normally a quiet person and keep to myself, but I'm starting to run out of energy for all that stuff. I'm finding out I need someone to talk to.

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                      #11
                      There are really informative ideas posted by you. I am totally agree with you. I like the sun very much And that is why I have lot of vitamin D. If you want then i will donate it for you...

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                        #12
                        I tripled my levels from 26 to 75 over the course of months and now take 6000 iu per day. You can affect them!

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