Frustrated and can't stop crying

[Leannrough]

So I went to neuro this morning to go over MRI and do nerve testing . I am so frustrated and I can't stop crying. I feel like I'm going crazy.
She said MRI didn't show much just a few like 3 she showed me the white spots and they were located in the periventricular area but not together. She said they can be from anything but report says could be dymelinating process but she said they just put that to cover all basis.

Then she did nerve test and don't see much but carpel tunnel in right wrist weird since both my legs have been numb,burning and cramping for 3 months straight. I am having a lot of trouble walking and after attempting to walk on treadmill drag my right foot

I said that is it and she you can get a second opinion because usually the first DR is wrong. I was like what the heck?

I have had constant urgency ,bladder issues and she said I have to see my primary for that ?

I have major balance issues and walk into door ways. And I get super car sick every time I'm in the car even when I'm driving

I forget what I'm doing, slur some words and go blank mid sentence . My tongue feels burnt and my lips are numb when I wake up

I said do we do more test like LP or evoked testing and she said no I don't think we need to but u can get a second opinion, your symptoms are all non specific lets just do more blood work Uggggh

So at this point I feel crazy , like I'm supposed to be blind or completely paralyzed before ill ever get a diagnoses of anything

Not even sure this is the right place to be

Thanks
LeAnn

[CaroleL]

LeAnn I'm so sorry you're going through this!

I would get another doctor. One that is sympathetic to your concerns and is willing to dig a little deeper until you get a dx.

You're in the right place here! That's what we are all here for. It can take years to get a dx and its very frustrating. I think most of us has been through this.

Don't lose hope! Fight for proper care, and answers.

Hugs!!!!!!!

[SNOOPY]

Well Leannrough, with a response like that I would gather up medical records, test results and see a different neuro, one who cares and is willing to look for answers...MS or something else.

[swingingwillow]

I think like a lot of people on this forum we've all done the ugly cry after an appointment that seemed to go nowhere.

Please do one nice thing for yourself that may cheer you up after the waterfall is over.

Hugs to you from me.

[ghostgirl]

Well Leannrough, with a response like that I would gather up medical records, test results and see a different neuro, one who cares and is willing to look for answers...MS or something else.

Ditto. The first neuro I saw basically told me he would never "label" me until I was completely paralyzed. I felt it was incredibly rude and unfair then and I still do. Time to find a caring doctor and not someone who wants all these other doctors to do the work for them.

[Seasha]

Well Leannrough, with a response like that I would gather up medical records, test results and see a different neuro, one who cares and is willing to look for answers...MS or something else.

Good answer! I'd do the same. It sounds like your doctor was practically inviting you to find some one else for a 2nd opinion. Is your neuro a MS specialist? If not, please try to find one.

I'm sorry that this is frustrating for you. I'd be crying too, but know that it's OK to cry. Get that sad out so you can then make room to doing something positive! HUGS to you

[HellsBells1]

I hear you. I have cried and cried many times after appointments where I did not feel listened to, and have felt exactly the same way you do... that no doctor will do anything until I am paralyzed. This has gone on for years.

I am nervous about my neuro appt on the 27th. Basically, my MRI said similar to yours. It said several lesions found in three different areas of the brain, left frontal lobe, parietal region, and periventricular region. Could be caused by microvascular ischemic changes. However, vasculitis or demyelinating conditions cannot be eliminated. "If clinical symptoms are suggestive of demyelination, this should be investigated further by a neurologist and perhaps further neurological testing."

So that says to me that with my sx, it is likely MS. But my GP said to me, with a very straight face, when he was copied on the radiology report, "Well, it's great news they found nothing wrong on your MRI." What the heck!!! So, I'm scared neurologist will say the same stupid thing. However, neurologist will also review my EEG and VEP and SEP results with me, which my GP did not have.

If neuro dismisses me this time, I'll be right back there with you, bawling my eyes out! Keeping my fingers crossed.

[Leannrough]

Thanks for all of you who responded to this it means a lot, you have no idea.
I'm going to request a second opinion tomorrow but with HMO I'm sure the process will take sometime.
I just can't understand why they can't treat my symptoms so at least I could have a little peace and maybe my legs back while going through this very long and dark road of not being DX.
Thanks again and a big hug to all of you who have been diagnosed or not that will brighten our day
I can't stop fighting to find answers my 3 kids deserve to have there mom back

[modernjazz]

So I went to neuro this morning to go over MRI and do nerve testing . I am so frustrated and I can't stop crying.
Thanks
LeAnn

I'm here wanting to cry too. Not that I "want" to, but I can't sleep anyway. My best client just said sianara last night. After 7 years or more. It hurts in many ways, first of which, how to pay the mortgage? etc. I haven't told my wife yet, because she'll flip out. So I cry silently for now. Looking for the upside.