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Anyone discontinue Copaxone?

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    Anyone discontinue Copaxone?

    I'm planning to stop taking Copaxone soon. I have started eating healthier - working from the OMS diet.

    I am hoping to read some stories about people who have stopped taking copaxone and started healing MS with nutrition. Good nutrition is making me feel better than any medication has & there are too many side effects from the DMDs. Plus, I'm sick of feeling sick from the DMD's.

    Thanks.

    Jade

    #2
    Jade,

    congratulations on starting OMS! Of course, there are many people who take and don't take DMDs on the site.

    Let us know how you do.

    Comment


      #3
      I stopped

      I stopped Copaxone. But I stopped because I became allergic to it.
      I do IViG every two weeks. Was doing that even before using C.

      I feel no different now than when I was on it.
      SgrammieD

      Comment


        #4
        I switched from Betaseron to Copaxone about 4 years ago. Copaxone, for me, is much more effective at controlling both the frequency and severity of flares than Betaseron ever was.

        I used to have 1-2 major flares per year, and they usually ended up in a 103 week hospitalization each. Since starting Copaxone 4 years ago, I have only been hospitalized once. I have not had a flare (even a minor one) for a year and a half.

        I cannot imagine ever wanting to go off Copaxone. My MS is under much better control with, than without, it.

        ~ Faith
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

        Comment


          #5
          Ever consider injecting Copaxone every other day, or every third, or more? There will never be a trial, but if you've been taking it for a long time your body may react just as well with less frequent dosing.

          With a less frequent dosing schedule you should consider supplementing with N Acetylcysteine as Copaxone maker Teva seems to think it helps make the drug work better.

          Google: copaxone n acetylcysteine

          You should also Google...

          n acetylglucosamine multiple sclerosis

          Comment


            #6
            Originally posted by knuckle View Post
            Ever consider injecting Copaxone every other day, or every third, or more? There will never be a trial, but if you've been taking it for a long time your body may react just as well with less frequent dosing.

            With a less frequent dosing schedule you should consider supplementing with N Acetylcysteine as Copaxone maker Teva seems to think it helps make the drug work better.

            Google: copaxone n acetylcysteine

            You should also Google...

            n acetylglucosamine multiple sclerosis
            There are studies that indicate that Copaxone, every other day, is just as effective as daily. I inject Copaxone just 4x per week, with my MS Specialists approval. The sample size in the studies are small, so the validity could be questioned. However, I've been doing this for most of the time that I've been on Copaxone, and my results with Copaxone are much better than my previous results with Betaseron had been.

            ~ Faith
            ~ Faith
            MSWorld Volunteer -- Moderator since JUN2012
            (now a Mimibug)

            Symptoms began in JAN02
            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
            .

            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

            Comment


              #7
              I have had stable MS for nearly five years total on Copaxone and I would never consider stopping it! There is a new formulation that should be released in the near future that is a double dose injection and only taken three times a week.

              I took Copaxone for more than 18 months, then stopped to try Tysabri for nearly three years with unremarkable results, then started Copaxone again, three years ago. Copaxone has given me the most relapse and symptom free years from any MS treatment since my diagnosis in January 2003. I have an extremely healthy and active lifestyle that has been the best while on Copaxone treatment.

              I still work full time and I'm 54 years old and I expect to work and be active until retirement age if I stay on Copaxone and have the same results.
              Take care, Wiz
              RRMS Restarted Copaxone 12/09

              Comment


                #8
                I have always been on a very healthly diet thanks to my mother teaching me how to eat right from a very young age. I have never eaten anything processed only fresh foods.

                I know that copaxone is a pain in the backside but I think back to what the alternative is before taking it. I had many flares every year and now feel so much better.

                Have you thought of staying on the copaxone and trying a healthy diet. You are what you eat and eating better will help always help.

                Good Luck

                Comment


                  #9
                  Originally posted by sgrammied View Post
                  I stopped Copaxone. But I stopped because I became allergic to it.
                  I do IViG every two weeks. Was doing that even before using C.

                  I feel no different now than when I was on it.
                  Sgrammied, would speak more on taking IVIG, I also stopped copaxone years ago, but now need to take DMD's again and would like to try IVIG, I need some newer type info on it to take to my doc in Canada.

                  Comment


                    #10
                    I took Rebif 2002 for almost two years. I hated taking it and was physically feeling worse and worse with each shot. Painful injection sites, cold/flu symptoms, etc. Dr switched me to Copaxone which I took for another couple years. Oh man!!! The headaches and migraines were so bad!! I quit taking all DMD's by 2004.

                    I just had a MRI in January and dr said MS is stable - no new lesions.
                    Karen

                    Comment


                      #11
                      Stopped Copaxone...

                      I stopped taking Copaxone after 4 years of the stuff.

                      I spoke with my Neuro and he told me I am not alone and that many people have dropped Copaxone.

                      He started me on Avonex as he believes it will be much more effective.

                      Good Luck!!!

                      Comment


                        #12
                        I switched from copaxone to gilenya- NO regrets. Just not having the painful injections sites is loverly- no reminders 24/7 of the MS dx. The first monitored dose is a pain, but after that- no issues. Am now on an alternate day dosing due to low WBC. Dropped the drug cost in half- ha ha ha.
                        MRI at end of month to see how it´s doing. Am less than two weeks from a relapse-free two year anniversary. Crossing fingers for sure.

                        Comment


                          #13
                          sw8689

                          What is it you want to know obout IViG. There are a lot of posts on here about it.

                          I am sorry that it has taken me so long to get back to you. Granddaughter on computer. Yes every day she is on from the time she gets home from school til I make her get off. Friends and utube.

                          I have to say that without IViG I would not be able to walk. It also gives me energy. For me it is great. Iwould not and can not go back of C or Rebif.

                          Please let me know what it is you want to know. I will try to answer your questions.
                          SgrammieD

                          Comment


                            #14
                            Diet & less copaxone

                            I started juicing fresh vegetables daily and it has increased my energy, mood and decreased my pain. I removed dairy and gluten from my diet for about 2 months as well and I felt fantastic - it truly felt miraculous. I had also reduced my copaxone to every other day with MS approval.

                            I recently started eating dairy and gluten again and my pain increased dramatically. That's enough proof for me, I need to be dairy and gluten free -- it is a very challenging diet to stick to (hence, the relapse on cheese and bread) but it is worth it.

                            Comment


                              #15
                              Stopped Copaxone as I had site skin dipping issues, becoming worse week by week. I was also over daily injections, after 4 1/2 years on Copaxone. Only one flare in that time, about 2 years into it. So, it was good for me. But I needed to try something else, and so have begun Aubagio.

                              Nutrition wise. You name it I've probably done it.

                              Have currently settled into a particular vitamin regimen, spirulina and broken chain chlorella, kefir, and good meat and veges. Not much fruit. Some nuts sometime. Regular homemade soups to help digestion. I juice at home. I was very full in about it, charts and restrictions etc for a couple of years. Also had to relax with that too!
                              Diagnosed 11/2007, Copaxone 8/2008 - 2/2013, Aubagio 3/2013 - 11/2013

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