Hi everyone,
I've been having various symptoms starting in January, but they got bad this summer -- I fell down the driveway, very bad tremors in my hands, blurry vision, extreme fatigue, legs shake especially walking down steps, etc. They did an MRI - clean, and blood tests have ruled out everything else like Lyme, EBV, connective tissue diseases, lupus, etc. I do have a B12 deficiency but levels have been increasing steadily since April. Physical symptoms are getting worse. At the most recent specialist appt, I was found to have decreased sensation in my feet, and hypermobile reflexes. From research I've done, I don't have a lot of the other symptoms of B12 deficiency - other lab work doesn't match up to what would be expected - and with that deficiency, it seems I would have slow reflexes?
No evoked potential tests were done yet, and it's proving to be hard to get an LP. Meanwhile, symptoms keep interfering with daily living and I just want treatment already. Anyone else had something similar/any suggestions? Do they ever start treatment without an official diagnosis and see how you respond?
thanks!
I've been having various symptoms starting in January, but they got bad this summer -- I fell down the driveway, very bad tremors in my hands, blurry vision, extreme fatigue, legs shake especially walking down steps, etc. They did an MRI - clean, and blood tests have ruled out everything else like Lyme, EBV, connective tissue diseases, lupus, etc. I do have a B12 deficiency but levels have been increasing steadily since April. Physical symptoms are getting worse. At the most recent specialist appt, I was found to have decreased sensation in my feet, and hypermobile reflexes. From research I've done, I don't have a lot of the other symptoms of B12 deficiency - other lab work doesn't match up to what would be expected - and with that deficiency, it seems I would have slow reflexes?
No evoked potential tests were done yet, and it's proving to be hard to get an LP. Meanwhile, symptoms keep interfering with daily living and I just want treatment already. Anyone else had something similar/any suggestions? Do they ever start treatment without an official diagnosis and see how you respond?
thanks!
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