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    Awaiting diagnosis

    Hi all

    Thought I would come and visit in the hope that I might clear my head a little and feel a little less isolated. I have had odd symptoms for about 10 years and have had 3 what I call lapses. I have been told by neuros that I meet all criteria for MS except it not showing on MRI.

    I lapsed a week ago and currently have right sided weakness, drop foot, tingly tongue, blurry eye and overwhelming fatigue. Speech slurs and swallowing difficulties when really fatigued. Stroke etc have all been ruled out and now have 6 month wait to see neuro as has Ben longer than a year since I last seen him. Unable to work at the moment and have a 12 month old so highly stressed at the moment.

    Hoping this site can help.

    Thanks

    #2
    Good grief that is a long time to be in limbo! Are your symptoms always the same (tingling tongue etc) or do they roam around? Do they get worse with each flair?
    Disabled RN with MS for 14 years
    SPMS EDSS 7.5 Wheelchair (but a racing one)
    Tysabri

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      #3
      Tongue and eye things are new and seemingly gets worse each time although can go several years after recovery with only minor symptoms that alter seemingly randomly.

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        #4
        Originally posted by Telezmo View Post
        Tongue and eye things are new and seemingly gets worse each time although can go several years after recovery with only minor symptoms that alter seemingly randomly.
        First, I would recommend you see an MS specialist.

        You can do this by visiting your primary care physician and getting a referral through them.

        I don't know how many MRIs you have had and how many year apart they have been.

        You should see an ophthalmologist (MD) for your blurry eye symptom. They can diagnose optic neuritis, at least at times (there are a few exceptions that only and MRI can pick up).

        No matter, it would also be a good place to start. So you need to see both an ophthalmologist and an MS specialist.

        You also need a battery of bloodwork but the MS specialist will do that.

        Hope that wasn't too confusing.
        Disabled RN with MS for 14 years
        SPMS EDSS 7.5 Wheelchair (but a racing one)
        Tysabri

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          #5
          Thanks. I have a 6 month wait to see neuro in my home state and isn't likely to be MS specialist. After reading and relating to posts on here I think it worth looking for MS specialist and going interstate to a larger capital city to get answers. Has been about 4 years since last MRI.

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