Hello,
My name is Aleksandra, 28 years old living in Germany, but I come from Poland, uptill now I have been working as a dentist. I just want to tell my story, maybe someone can relate.
It all started in June, I was driving, totally relaxed, comming back from shopping, when all of the sudden I felt this unusual head sensation, it's hard to say if it was electrical shock. It was so disturbing and new to me that I got a little scared and 2 hours later I went to the ER- they gave me a painkiller and sent me home...The next 2 week I have been doing fine, I just forgot about it. Then one day it started all again- after my workout- this time I felt metallic taste in my mouth, I felt like my eyes were swollen and those head sensations.
This time I went to see a neurologist, she diagnosed me with panick attack and gave me ativan. The next 2 months I had lots of other neurological symptoms, which are comming and going- started with tingling in hands and feet (3 days), extreme head pain behind my right eye, eyeball pain (2 days), blurry vision also right eye, shooting pains in arms, thighs, right kidney, bladder, chest- right side, I would say lung pain, amoung this I had those head sensations, like attacks with a slight weakness of my left hand, feeling like my face and throat are swollen on the right side, feeling like my head and hands are burning and nausea (3 days long).
Sometimes I felt like I'm about to die- right now I experiance burning tongue sensation, with tooth marks on it. Today I was talking to a friend- I was excited, because I haven't seen here a long time, and all of the sudden my hands were shaking and I got extreme vertigo.
Back to diagnosis- I was at the hospital of course- I had mri, which showed 10 mostly subcortial located lesions, 2-3 of them fulfilling Barkhof criteria, neck clear, LP clear, VEP SEP, also ok. The naurologist which is MS specialist, wrote in the letter, that due to MRI photos he cannot explain my symptoms. I don't understand how is it that my lesions are located in the area that is not responsible for any functions and yet I have so many symptoms, mostly in the area of head and neck, seldom I had tingling and numb feelings in my hands at night.
My neuro says that I might have MS due to my lesions, I will have another MRI on 13th October. Oh- lume, vasculitis, lupus, small vessel diesase- I don't have it. I'm trying not to freak out, but it's so hard feeling most of the time malaise, and having non stop burning tongue 2 weeks now. Greetings to all limbolanders
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
My name is Aleksandra, 28 years old living in Germany, but I come from Poland, uptill now I have been working as a dentist. I just want to tell my story, maybe someone can relate.
It all started in June, I was driving, totally relaxed, comming back from shopping, when all of the sudden I felt this unusual head sensation, it's hard to say if it was electrical shock. It was so disturbing and new to me that I got a little scared and 2 hours later I went to the ER- they gave me a painkiller and sent me home...The next 2 week I have been doing fine, I just forgot about it. Then one day it started all again- after my workout- this time I felt metallic taste in my mouth, I felt like my eyes were swollen and those head sensations.
This time I went to see a neurologist, she diagnosed me with panick attack and gave me ativan. The next 2 months I had lots of other neurological symptoms, which are comming and going- started with tingling in hands and feet (3 days), extreme head pain behind my right eye, eyeball pain (2 days), blurry vision also right eye, shooting pains in arms, thighs, right kidney, bladder, chest- right side, I would say lung pain, amoung this I had those head sensations, like attacks with a slight weakness of my left hand, feeling like my face and throat are swollen on the right side, feeling like my head and hands are burning and nausea (3 days long).
Sometimes I felt like I'm about to die- right now I experiance burning tongue sensation, with tooth marks on it. Today I was talking to a friend- I was excited, because I haven't seen here a long time, and all of the sudden my hands were shaking and I got extreme vertigo.
Back to diagnosis- I was at the hospital of course- I had mri, which showed 10 mostly subcortial located lesions, 2-3 of them fulfilling Barkhof criteria, neck clear, LP clear, VEP SEP, also ok. The naurologist which is MS specialist, wrote in the letter, that due to MRI photos he cannot explain my symptoms. I don't understand how is it that my lesions are located in the area that is not responsible for any functions and yet I have so many symptoms, mostly in the area of head and neck, seldom I had tingling and numb feelings in my hands at night.
My neuro says that I might have MS due to my lesions, I will have another MRI on 13th October. Oh- lume, vasculitis, lupus, small vessel diesase- I don't have it. I'm trying not to freak out, but it's so hard feeling most of the time malaise, and having non stop burning tongue 2 weeks now. Greetings to all limbolanders
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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