Hi guys. Tomorrow is the day that hopefully I get a diagnosis so that I can start treatment. But I'm hopeful that in the event she diagnoses NOT MS or still in limbo that you guys can help me think of questions to ask to help me get a handle on all this.
The basics are:
MRI: 4 mm hyperintensity in white periventricular matter of right frontal lobe and a 7 mm one in white periventricular matter of right parietal lobe. Typical radiological boilerplate about demyelinating process, ischemic change or vasculitis with clinical correlation recommended. Neuro says these don't scream MS to her.
Blood work abnormalities: Sed rate: 39, Vitamin D 21, serum creatinine 0.43
CSF abnormalities: (no o-bands which is gonna make getting the dx tough, I think) CSF albumin low at 9, CSF glucose high at 76, CSF IGG index just at the edge at 0.6.
VEP abnormal bilaterally indicating demyelinating process involving both optic pathways.
In addition to my presenting symptoms which were enough for two different doctors to mention MS, the latest is what seems to be a case of eye ickiness a couple of weeks ago (I'm reluctant to call it optic neuritis because the dx at urgent care was "eye pain") which was made better painwise with the horrible methylprednisolone although the vaseline-esque quality of my vision in that eye is not better.
SO -- I'm not asking for any of you guys to guess whether I'm going to get the diagnosis or not but I am asking for your help in knowing intelligent questions to ask either way. I'm better off to be prepared because I'm going to be at the visit by myself and I know I won't think of everything.
THANK YOU.
Shelby
PS Sorry so long.
The basics are:
MRI: 4 mm hyperintensity in white periventricular matter of right frontal lobe and a 7 mm one in white periventricular matter of right parietal lobe. Typical radiological boilerplate about demyelinating process, ischemic change or vasculitis with clinical correlation recommended. Neuro says these don't scream MS to her.
Blood work abnormalities: Sed rate: 39, Vitamin D 21, serum creatinine 0.43
CSF abnormalities: (no o-bands which is gonna make getting the dx tough, I think) CSF albumin low at 9, CSF glucose high at 76, CSF IGG index just at the edge at 0.6.
VEP abnormal bilaterally indicating demyelinating process involving both optic pathways.
In addition to my presenting symptoms which were enough for two different doctors to mention MS, the latest is what seems to be a case of eye ickiness a couple of weeks ago (I'm reluctant to call it optic neuritis because the dx at urgent care was "eye pain") which was made better painwise with the horrible methylprednisolone although the vaseline-esque quality of my vision in that eye is not better.
SO -- I'm not asking for any of you guys to guess whether I'm going to get the diagnosis or not but I am asking for your help in knowing intelligent questions to ask either way. I'm better off to be prepared because I'm going to be at the visit by myself and I know I won't think of everything.
THANK YOU.
Shelby
PS Sorry so long.
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