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Low dose naltrexone-- MS miracle drug?

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    #16
    Rebif & LDN

    My Dr. had me on Rebif and LDN. I felt terrible the whole four months!

    I'm now on Copaxone and LDN and feeling LOTS better!

    Sara

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      #17
      Thank you sarah for your response to my question rather then getting upset about my title. And to the rest of you wonderful (sarcasm) msworld people thank you for your critisism. 1st of all, I did a lot of research o ldn on my computer every website I went to dubbed it the "miracle drug" so I called it that ASSUMING everyone ha already heard it used this way already. I mean all of you seem to be so well educated on the topic of ms. I mean you all already go around acting like You know oh so much. I've only been diagnosed with ms since June. Excuse me for not knowing as much about it. Of course, if I had no life and sat around my
      Computer all day complaining how bad my life is now that Iknow I have MS (even though I'm pretty sure I've had it sinc early childhood) id probably know a lot about it too. I get so tired of coming here and being critiscized for my
      Opinion or for wanting answers. At first I got the idea that this board seemed full of people who cared but I guess since I'm young and not yet wheelchair bound or having as many mobility issues (well, not complaining about it anyways) that I guess you all feel so superior to me for some reason. I'm trying to feel better. And I know there's a way to. I have a toddler son so I feel like giving up and blaming all the negative experiences in m life on ms jut isn't currently an option for me. If I didn't have my son, I'd be just like most f you on here. I didn't intend to make people angry or upset but apparently you will all interpret me how you wish. I know MS is a difficult disease but I'm still great full that I woke up today and that I still have the motivation to continue to push forward and not let this disease dictate my life. I'm leaving this board. Too much know-it-alls who think thier so much better then you. Whatever I've had plenty of being treate like crap by the people an the moderators.

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        #18
        Also

        Thanks to the first few who answered too. Those were all nice answers as well. I just get tired of being criticized by others on like all my posts it's old ya know? It's just irritating.

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          #19
          MandaPanda,

          Make sure and drink LOTS of water on Rebif ad premedicate!

          Sara

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            #20
            You might want to trying drinking a lot of water and premedicate to help with flu symptoms! Also, I don't know if you take your shot in the morning or night? If at morning, you might want to try night, so you can sleep through symptoms.

            Sara

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              #21
              Rebif was definitely not the DMD for me! I felt horrible and eventually starting itching and rashing so Neuro took me off and sent me to find a "MS specialist" I ended up at a MS clinic and found a fantastic neuro. He switched my DMD to Copaxone, added Amantadine for fatigue and we switched my prozac to Lexapro and it is working. I love that I have no side effects Copaxone which makes me not mind injecting daily. In fact I find it so much easier compared to the Rebif. Feel well and good luck in your search, DO NOT give up.....you will find the right doctor and treatment for you.

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                #22
                Yes, those DMDs that are "interferons" do not agree with a percentage of folks. There is actually a blood test I believe that checks to see if you will have the antibodies (don't quote me on this) or whatever.. that will not agree with that certain population. Again that is why many choose Copaxone.

                Also, I am not following where you found negative or sarcastic responses. I am sorry if you did not feel the support and much needed understanding. Was it on this thread or another? Maybe I am just missing something, but I re-read all these posts and do not see it.

                Again, I am so sorry if you are not feeing 100% supported. But I can appreciate how badly you are feeling with the side effects not going away and kicking your butt.

                Again, MandaPanda, to me, sometimes the side effects are not worth losing one's quality of life...but.. that is just ME!! Since there are other choices, I would recommend you look into getting off Rebif if you want to and finding something else better for you.

                Hope you are feeling better real soon!

                Gentle Hugs, Jan
                I believe in miracles~!
                2004 Benign MS 2008 NOT MS
                Finally DX: RR MS 02.24.10

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