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    #16
    Still lov DH

    Yes, I can say I still love my DH very much, and find him attractive, and love the way he treats me with so much affection. However, can't say that I still find him "sexy" as that implies that an arousal response happens, which it just never does.

    Family doc ALWAYS blames any of my problems on being tired, anxious, depressed, or stressed! I asked him last time why he never considers any of those things to be symptoms of a deeper illness going on in my body, that I know better than anyone? In other words, perhaps start looking at my fatigue, depressing and anxiety as symptoms, along with my other sx that I am complaining of (pain, electric shocks, fasciculations/twitcing, headache, etc, etc.). He simply answered that depression is a diagnosis of elimination, and since my MRI's were clean and the Neuro didn't find anything wrong with me, then his dx is depression. My doc is just plain stupid, if he thinks that 8-9 oval lesions is nothing, combined with my history.

    I don't think the sex thing will ever come back after 5+ years, so I am just sad about it, and have come up with a schedule for DH that tries to meet his needs (even though 2x/week for 5+ years = over 500 times of just giving in). This is no fun.
    20+ years of sx - no dx yet - getting close!

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      #17
      Alcohol not allowed but it worked

      I apologize if this is completely inappropriate but I've been dealing with zero sex drive for over a year but after only two shots of whiskey my body seems to react to my gorgeous husband as it used to. Check with your doctor but mine helped me with frequency and timing of my meds....and BINGO!

      I was diagnosed misdiagnosed then diagnosed over the past 10 years.

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        #18
        I'd say you are not inappropriate at all. However, since I do not have a formal dx, I have no meds to be an excuse. I do remember when I was on anti-depressants a long time ago, there were things that would help bring my libido back (such as a little too much alcohol, or my DH being super romantic all day/evening) but now it's just gone.

        Too bad, so sad. I tell him "It is what it is."

        All I can say is that I wish I could tweak some meds to get some sort of romance back. I'm glad you are able to manage, and hope you never lose it completely.

        Good luck.
        20+ years of sx - no dx yet - getting close!

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          #19
          wow

          for the last couple of years i have had low or no sex drive and my other half is sexual its really hard I was just DX 3 weeks ago and i feel bad because he isn't getting what he needs. He is so good to me but like another here the rough is the only way I feel anything. I don't even have the erge for it anymore. its hard to understand but he hasn't even touched me in bed in over 1 1/2 months

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            #20
            I'M LIKE THE 40 yo VIRGIN-but I'm much older!

            IT HAS BEEN OVER 10 YEARS SINCE I'VE BEEN ABLE...
            LOSS OF DESIRE IS NOT THE REASON...US OL' MEN THINK ABOUT IT ALL THE TIME.DAY & NIGHT

            I BELIEVE IT'S THE COMPLETE NUMBNESS ALL OVER THAT MIGHT BE THE REASON...ANY OF THOSE ED PILLS DIDN'T WORK FOR ME..I TRIED THE UROLOGIST SAMPLES BESIDES WHO CAN AFFORD THOSE EXPENSIVE MEDS?

            SO WE HAVE TO DO WITHOUT IT...WHAT CHOICES DO WE HAVE?...AT LEAST I STILL HAVE MY MEMORIES AND SWEET SEXY DREAMSTHAT HAPPEN ONCE IN A WHILE
            MS'ers may not all walk-- but, we can still roll along-so lets rock-n-roll as a power mobility group I do have an extra scooter & Powerchair The cat or my caregiver won't ride with me so maybe you could?

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              #21
              ALWAYS SOMETHING

              I also have lost desire, I just don't feel like it plain and simple. I don't feel attractive, I have muscle spasms (painful ones) I also have bladder issues so no don't want to.

              I love my dh with all my heart and want to please him so I do try once in a while to please him but with no real desire in my heart.

              Good luck!!!
              DIAGNOSED=2012
              ISSUES LONG BEFORE
              REBIF 1 YEAR

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                #22
                Cant feel it!

                I am a 26 year old female. Was diagnosed with MS last May then switched to specialist in Jan of this year and found out it's only C I S. My husband is a paraplegic so we have trouble as it is. We've both had health issues the past year so we have not been intimate much at all. Yesterday was the first time in months and (Sorry for too much info) I achieved "it" but couldn't feel it. So frustrating! I recently went off Topamax which caused lots of numbness and tingling in my arms legs etc. I understand it can take a long time for your body to adjust from that drug. I was hoping it was a side effect from that but it sounds more like a common problem. Anyone have experience with topamax? Ladies have any of you been able to achieve it but not feel it?

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                  #23
                  Orgasm issue

                  It definitely sucks. 54 year old male can get excited but not finish. It is the most frustrating thing a Male can have I think. all thanks to MS

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                    #24
                    Right there with you

                    I'm 9 yrs younger than hubby. After the widow maker heart attack & 2 surgeries after motorcycle accident, he's the Energizer bunny when it comes to sex. On the other hand, lack of sensitivity in that area makes me more like a nun. He tries to understand but can't find the right words. Just wish I had better communication skills - but the frustration just makes blow up. UGH

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