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    Loss of sensitivity

    I'm a male 56, MS since 89. SPMS 2010. I'm probably luckier than most when it comes to arousal. The problem is loss of sensitivity needed to achieve orgasm. I even get muscle tension headaches at times, having to overexert myself to get there. Mds. say it is due to ms, not meds. Been getting worse over past 5 yrs. Married 36 years. Anyone else going through this have any coping strategies?

    #2
    Hi Maineahme.

    I am a 41 year old female, but I can certainly relate to what you're going through. It's frustrating to say the least. Not sure that this would be helpful to you, might even exacerbate your problem, but my husband's urologist suggested Viagra for me. Said the increased blood flow would increase sensation. He gave me samples, but I have yet to try it.

    I also find that, uh hem, vibrating devices are helpful when I'm having trouble.

    I will say though, this has not been a permanent problem for me. It comes and goes, so hopefully your situation is not permanent as well.

    Best,
    T2B
    , T2B

    "I have a lot of pain in my microwave".

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      #3
      Me too

      I have been having no sensitivity for months, very sad. My DR put me on steriods, which have helped with my other problems, but not fully the sex side. Now that I am done with the steriods, I feel worse then before. I think I am now going through withdrawals of the steriods, anyone else had this happen?

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        #4
        hi, i'm male 59 years old,41 yrs married, Cialis and cutting back on all of my pain meds helps me,but still sensitivity is a problem.mark
        DX's,MS,1/8/04
        copaxone

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          #5
          sensitivity

          I am a 32 year old woman and I have no sensitivity during intercourse, but can only achieve an orgasm with extra stimulation. It really sucks since I am supposed to be at my prime right now. This whole MS thing has me so depressed right now! I guess the no sensitivity doesn't really matter, my husband really doesn't have much of a sex drive anyways so....................and he is only 30
          RRMS 10/2011 Sick and tired of being sick and tired!

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            #6
            Check all the side effects of your meds. Some have sexual problems, then talk to your dr about other meds.
            some complications cannot be fixed except by your urologist ( ed for ex.).
            hunterd/HuntOP/Dave
            volunteer
            MS World
            hunterd@msworld.org
            PPMS DX 2001

            "ADAPT AND OVERCOME" - MY COUSIN

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              #7
              question

              So, might be a stupid question, but since I have numbness down there now and cannot feel intercourse, does that mean I will likely never feel it again, or can I gain that feeling back?
              RRMS 10/2011 Sick and tired of being sick and tired!

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                #8
                here's hoping...

                I'm hoping it's not permanent! I'm in the same boat. I turn 30 on Nov. 1st. Unfortunately, my husband (31) DOES still have a very healthy appetite in that department. I also had looked forward to being in my "prime." Seems like a lost cause right now :-( Feeling very overwhelmed by it all right now!!
                A life lived in fear is a life half-lived.

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                  #9
                  I had the numbness from hips down when first diagnosed a year and a half ago. Had the IV steroids for 5 days and after 2 months finally got the feeling back, so don't despair, it can dfinitely come back.

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                    #10
                    Getting rough helps a lil

                    I'm 31 and the only time I start to get a feel good feeling is when hubby starts getting a lil rough (sorry if thats to much info lol) But the problem with that is it will get him to excited and he cant last at that pace so for me either some high powered vibrator by myself or a few mins of rough to feel anything....... I really resent the fact it takes such extremes for me to feel anything but I guess I should be glad I can feel anything no matter what it takes

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                      #11
                      same here

                      I've had this problem for years but it's been worse the last couple years...no feeling, sensation or urge to do "so"! At first, my husband felt as though he wasn't doing something right but he gradually started understanding my undx illness. My problem is not only the no sensation and numbness but also, my hips get locked in a certain position and can not move for a few minutes....very painful. Also, I guess I'm very fortunate now for about the past year (this may sound mean but) my husband has very low testosterone levels so he's not had the "urge" either...sorry.

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                        #12
                        Try a specialist doctor for discussing your problem

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                          #13
                          Just joining in to say that no sensitivity is becoming a problem for me too. Suddenly, within the last month, it is completely gone. I am struggling with depression and on meds for that and I know that contributes, but a complete lack of desire or feeling is... well... sucky. Only 29.

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                            #14
                            Too much or too little - which is worse?

                            For several years now, I bounce back and forth between very little to no sensitivity/sensation in the "below regions", or hypersensitivity. The hypersensitivity is not pleasurable, though, as then I cannot be touched at all, and it is really freakin' annoying.

                            Needless to say, either situation doesn't help for any kind of satisfaction. My DH is uber-pumped with testosterone and comes from a culture of high-sexuality and high libido. I feel so guilty depriving him, while I am getting absolutely nothing out of the situation. I have zero libido - so no desire, no arousal, no orgasm = no fun.

                            I have no dx yet, but I'm pretty convinced that this is related to MS (considering my other symptoms over many years and the recently found lesions on my MRI). Unfortunately, this problem has been continuous for 5+ years and I am not on any meds that would affect this area of my life.
                            20+ years of sx - no dx yet - getting close!

                            Comment


                              #15
                              This is gonna sound weird, but...

                              I'm still very much attracted to my husband, but the desire for sex is simply gone. It just simply disappeared about 10 years ago. It's not him, and I do still find him very sexy. Toys didn't help, and despite pleas to every doctor I've spoken to, they just kind of shrug and blame it on the anti-depressant I'm on.

                              Wish I could offer some helpful advice, but I don't have any. Just chimed in to let you know you are definitely not alone in this department.

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