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    New Symptom

    A few months back I noticed some urgency and would have to run to the bathroom and almost not make it. Didn't think much of it.

    Now recently I noticed that I will be sitting and when I get up I feel like I have to go and I just start to trickle. I run to the bathroom and it just keeps coming out.

    Is this a MS symptom or could it be something else?
    Suspected MS 1985. dx 1994 still RRMS EDSS 1.0

    #2
    Probably an MS symptom. Someone here suggested taking magnesium/calcium supplements. (You can get them at a health food store, or, maybe even Walmart.) I take them twice a day now. They have done wonders, and, they started to work after only a day or two. Seriously decreases urinary frequency problems!

    ~ Faith
    ~ Faith
    MSWorld Volunteer -- Moderator since JUN2012
    (now a Mimibug)

    Symptoms began in JAN02
    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
    .

    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

    Comment


      #3
      Is it a combo pill or do I need to buy them separately?
      Suspected MS 1985. dx 1994 still RRMS EDSS 1.0

      Comment


        #4
        oh yes

        Unfortunately that is a very familar symptom..I personally use light pads and carry an extra pair of underwear in my purse 'just in case'.

        I have found oxybutinin prescribed by my Neurologist very useful. It can be taken daily but I prefer to use it on days when I need an extra safeguard.

        There always is a possibility you may have a bladder infection. You should check with you physician..

        Best of luck
        Susan......... Beta Babe since 1994....I did improve "What you see depends on where you're standing" from American Prayer by Dave Stewart

        Comment


          #5
          Hi Katje...

          Now recently I noticed that I will be sitting and when I get up I feel like I have to go and I just start to trickle. I run to the bathroom and it just keeps coming out.

          I had a urologist tell me that when getting the sudden strong urge upon getting up from sitting position, it was bladder spasms.

          I highly recommend you see a urologist. Most will do a bladder scan to check for Post Void Residual (urine remaining in the bladder after going).

          NIH std is 100m/l or more is too much,even for an old fart like me. If you are a young adult, normal would be 50m/l or less.

          Early last week I had a problem could not go or sleep, till finally the dam broke around 5am (not fun). Got into the urologist and my PVR was over 300 ouch! So I was taught how to self-cath on the spot. Must be nice ladies to have a short plumbing run.

          Gomer Sir Falls-a-lot

          Comment


            #6
            Originally posted by gomer View Post
            Hi Katje...

            ... Most will do a bladder scan to check for Post Void Residual (urine remaining in the bladder after going).

            ...
            Yup; that's what the nurse at my MS Specialists' office did. That's why I didn't go to a urologist, because they'd already done that and didn't think that I needed to.

            But, it probably makes sense to have someone do that that for you. If the test is done, it can either alert you to a problem, or else reassure you that things might be solved in an easier way.

            ~ Faith
            ~ Faith
            MSWorld Volunteer -- Moderator since JUN2012
            (now a Mimibug)

            Symptoms began in JAN02
            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
            .

            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

            Comment


              #7
              Yup! All the fun of this MonSter. Now I self-cath as needed.
              Been doing it for about 4yrs now. I do recomend you see a urologist,next to my neuro he's my best friend!LOL.

              Comment


                #8
                MamaBug - Would this work? "Spring Valley Calcium Magnesium & Zinc Bone Health Dietary Supplement" from walmart?

                I have to wear depends constantly now since I never know when the urge is going to hit me or how bad it'll be. And the oxybutynin that I've been on since January doesn't seem to do anything.
                Diagnosed December 20, 2011
                Avonex: February 10, 2012 - March 16, 2013
                Tysabri: June 28, 2013 - May 23, 2014
                Betaseron: August 15, 2014 - March 10, 2015
                Aubagio: June 18, 2015 - current

                Comment


                  #9
                  Q 4 owlnona....
                  ..........."Now I self-cath as needed."............

                  If you only do it as needed, how do you know when its needed?

                  Gomer Sir Falls-a-lot

                  Comment


                    #10
                    A New Old Symptom

                    For the last 5 days when I wake up and get out of bed I can't make it to the bathroom in time. The good thing is that I have plenty of pajama bottoms (just have extra laundry to do) and the tile floor in my bathroom cleans up easily! Technically I guess I am Limbo Land though I would prefer to listen to my GP's cheerful pronouncement that MS is not the cause of my numerous funky symptoms.

                    I have had issues with bladder urgency before but they have passed in time. I also currently have 2 good sized kidney stones (1 in the left & 1 in the right) but this doesn't "feel" connected to the kidney stones, but feeils more like my brain and bladder are not communication effectively.

                    I played eany meany miney mo with my various (mostly clueless) doctors and decided to call my urulogist. It is nice to know that I am not alone, please wish me luck <3 M.
                    M.
                    A question that sometimes drives me hazy: am I or are the others crazy?
                    Albert Einstein

                    Comment


                      #11
                      good luck, they may suggest urodynamic studies to be sure where the problem is, whether its spasms or some other mechanism -

                      Comment


                        #12
                        Originally posted by LostCupcakes View Post
                        MamaBug - Would this work? "Spring Valley Calcium Magnesium & Zinc Bone Health Dietary Supplement" from walmart?

                        I have to wear depends constantly now since I never know when the urge is going to hit me or how bad it'll be. And the oxybutynin that I've been on since January doesn't seem to do anything.
                        Probably. Check the "Supplement Facts". A daily dose should include 400mg of magnesium, and 1000mg of calcium. I don't know if it matters much what time of day I take them. But, for me, 2 tablets equals approx that much, so I take one in the morning and one before bed.

                        ~ Faith
                        ~ Faith
                        MSWorld Volunteer -- Moderator since JUN2012
                        (now a Mimibug)

                        Symptoms began in JAN02
                        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                        .

                        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                        Comment


                          #13
                          Katje, you just described perfectly what's been happening to me lately. Once could be a fluke. More than once? Probably not. Will try the Mg/Ca combo. I hope this works. Uro wanted to give me some kind of med the last time this popped up. It was minimally inconvenient and I declined because of that and the long list of side effects. This time, there is no ignoring it.

                          The last time was just a quick, small leak a couple of times. This time, like you say, it keeps coming.
                          It's not fatigue. It's a Superwoman hangover.

                          Comment


                            #14
                            Can't go to the bathroom

                            I have issues going to the bathroom. I hurry to urinate and I can't. I get a trickle. And I sit and sit and sit then if I push real hard I can release my full bladder. Sometimes it feels full only to find its not. My hubby is now getting concerned because he wakes up when I run to the bathroom and listens. When I come back to bed, he says he didnt hear much and he is getting concerned. Should I be? It comes and goes so its not a constant thing. Can I relate this to my newly dx RRMS? Any advice would be appreciated. Thanks
                            STR

                            Comment


                              #15
                              STR --

                              What you describe (strong urgency, yet only able to produce a trickle) sounds like you may have a UTI (urinary tract infection). It is not uncommon, when you have MS to be at higher risk for those.

                              I suggest you make an appointment, today, to see your doctor about it. Your doc will likely have some lab work done. You'll have to produce a urine sample at the lab, so do whatever you can to try to be able to produce at least a trickle, or a little more, when you arrive at the clinic.

                              A UTI can produce exacerbation-like-symptoms (a pseudo-exacerbation) -- real symptoms but not a real flare. Even worse, a UTI can trigger a real exacerbation (flare, relapse, whatever you call it).

                              Please get it checked out today.

                              ~ Faith
                              ~ Faith
                              MSWorld Volunteer -- Moderator since JUN2012
                              (now a Mimibug)

                              Symptoms began in JAN02
                              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                              .

                              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                              Comment

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