Greetings
I am new on this forum, my wife has M.S. and I have been her caregiver for 15 years, but for the last five years, things have been getting worse. Now I sleep in a recliner chair and then sometimes on the floor with a pillow, close to her room , so that I can hear, if she needs me. My home has three more bedrooms, that I can sleep in, but then I can't hear her calling me and that would be aprox every two hours, during the night.
She is at the advanced stage, and can't even move a finger, totally paralyzed, her voice is so soft that I can't make out what she is saying. I got to use a sling and power lift to transfer her.
I had to fight many battles with agency's like CCAC really pulling hard to get her into a nursing home, which makes care giving all the more stress full and now I got to deal with her Doctor that does not script meds as he told me that soon there isn't much we can do. I am confused, why all these battles with people.
Then only a few months ago, I was bringing her to bed in her power chair and her foot was out to the left of the chair to much and as I was going through the bedroom doorway, her foot got caught on the doorpost and broke her leg.
That really set alarm bells going, CCAC and the new abuse committee was wanting to take her to a nursing home. So-oooo after 15 years, were are my good credentials, now I am classified as a abuser. It was my children, that fought for me and told them all that I would never just break moms leg on purpose, so the abuse committee and CCAC quickly went home let me off the hook and I thank those two agencies so very much for their kindness and all the stress.
I am 61 years old and hold a full time job working the floor all day as a mechanic, I guess this is getting much harder, because I am getting older. I put my user name as hificanada , hifi is my hobby and my wife and I listen to classical music every night, she loves that and lets her escape, and I can tell you that it is the largest hifi in southern ontario, so that it can give the sound of really being there and the sound of really being there, gives us all a chance to escape.
I am new on this forum, my wife has M.S. and I have been her caregiver for 15 years, but for the last five years, things have been getting worse. Now I sleep in a recliner chair and then sometimes on the floor with a pillow, close to her room , so that I can hear, if she needs me. My home has three more bedrooms, that I can sleep in, but then I can't hear her calling me and that would be aprox every two hours, during the night.
She is at the advanced stage, and can't even move a finger, totally paralyzed, her voice is so soft that I can't make out what she is saying. I got to use a sling and power lift to transfer her.
I had to fight many battles with agency's like CCAC really pulling hard to get her into a nursing home, which makes care giving all the more stress full and now I got to deal with her Doctor that does not script meds as he told me that soon there isn't much we can do. I am confused, why all these battles with people.
Then only a few months ago, I was bringing her to bed in her power chair and her foot was out to the left of the chair to much and as I was going through the bedroom doorway, her foot got caught on the doorpost and broke her leg.
That really set alarm bells going, CCAC and the new abuse committee was wanting to take her to a nursing home. So-oooo after 15 years, were are my good credentials, now I am classified as a abuser. It was my children, that fought for me and told them all that I would never just break moms leg on purpose, so the abuse committee and CCAC quickly went home let me off the hook and I thank those two agencies so very much for their kindness and all the stress.
I am 61 years old and hold a full time job working the floor all day as a mechanic, I guess this is getting much harder, because I am getting older. I put my user name as hificanada , hifi is my hobby and my wife and I listen to classical music every night, she loves that and lets her escape, and I can tell you that it is the largest hifi in southern ontario, so that it can give the sound of really being there and the sound of really being there, gives us all a chance to escape.
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