@ Rest Area 51 Paging ALL MS Newbies June 17 '12

[gomer]

Welcome to Rest Area 51... a special haven for our family of newbies Dx'd w/MS in recent days or years and old-timers that are newbies at heart. We really get it, we understand like no non-MS'r ever could.

Happy Fathers Day Dads!


Take a well deserved break from your travels on the MSuper highway,pull into a nice cozy shady parking spot, Pitch a tent or just lay out a blanket and enjoy the crisp cool fresh air . Help yourself to fresh Cider and donuts. The camp fire is roaring in the open pit ready for hot dogs, marshmallows and smore's Feel free to share your ideas, experiences and support to your fellow newbies. Relax, you are among friends, friends that understand. We have a virtual soap box, feel free to vent anytime.

Being a newbie can be as scary and lonely as being in limbo, Remember we are your MS family away from family. The BIG question answered means many more new questions and decisions. For those still working on, seeking a formal MS Dx, I highly recommend you check out MinivanMama's Limbo Island.

PLEASE.... Let US know how YOU, a member of our MS newbies family is doing.


Have a QUESTION? Please don't be shy........
The only dumb stupid question........is the one NOT asked.

How was your Week?........
...Good I hope, Any Dr.apts tests etc?

....Any Dr. apts. tests etc.

Gomer Sir Falls--Lot

[alishape]

This board is the best spot. This past week has been totally up and down for me. I'll have a good day, then a bad day. I am starting to feel like a manic depressive! Today was a good day. I think it was because yesterday was so awesome. Me and my girlfriend and a bunch of other folks went to philly for a cheese steak. I love those sandwiches, even though they don't seem to season the meat at all. Everybody else, not so much.

Anyways, we saw the liberty bell and walked around, (not too much). Everybody was so disappointed in the sandwiches that they didn't even want to see the Rocky steps, lol. It was so nice to be out and about with people I love. I couldn't drive the whole way back because of the shaky legs, but I wasn't even too upset with myself. That's not always true for me. Sometimes I get so frustrated with my weaknesses...maybe I am adapting.

Today I slept alot I think because I used up so much energy yesterday. I knew it was coming, and had kinda prepared to be OOC for most of the day. A new routine. I hope the rest of us newbies and newbies at heart had a good weekend too!

[journeyman]

Approaching next relapse.

GOMER
So what is going on? Is our name changed to "Limbo Landers?" or is it still "Rest Area 51?"
Be easy on me - I'm getting real tempermental and more forgetful as I approach my relapse OR so I'm told by my married caretaker. I want to be stuck with you so keep me posted.


Dave, Tampa, Florida
"Journeyman"
Weather: 91 deg. and 50% hum. We have been coming out of a drought. Our hum. is usually in the 80-90% range.
We have a large disturbed area coming up from the Florida Straits. Its a "Wanna-be" hurricane. It is supposed to come up the spine of FL so unless it turns into the Gulf it doesn't have a chance.
Status: four years since dx, four months into what is usually a six month remission. Things are already starting to show up. The "lead blanket" fatigue has arrived plus anxiety and down mood. Despite all I know I still get fearful of my relapses. My loving wife, caretaker and weather vane. She usually spots my symptomatic storms before I do.

[hunterd]

Hi Dave,

No, you are still rest area 51, but I thought because it is for the newly diagnosed there may still be some ties to those still on the island. I am in the process of seeing what we can do. Thanks.

hunterd

[gomer]

Jman........

Do NOT take a step. (don't want ya falling down off a perch)...

I see the title has been changed to better reflect the change.

I have no problem being in the same boat (sub-forum) with MiniVanMaMa's Limbo Island. LI was the inspiration for RA51 in the first place. I had been a resident of LI for a few months while my fam doc was pushing for my formal complete MS work-up.

When my RRMS Dx came, it was no surprise. Suddenly I no longer belonged on Limbo Island, was lost and not sure where to go, what to do or what to expect next. LI was such a wonderful resource, and I figured if I felt lost in space/ at sea; others surely would feel the same. Hence Rest Area 51.

Why Rest Area? Ever take a long trip? Well the journey from when the possibility of MS begins, to the time of formal MS Dx can be a very long and winding road for many.

Why 51; Rest Areas often have exit numbers (mile markers), and after an often long grueling, venture down the highway to Dx, we need to stop and rest, then continue our venture. For most, a MS Dx is a shock, an unknown or strange/alien area, and some of us went thru a period of denial by doctors our Sx were real, and not the product of imagination, ie All in Your Head. (OK in my case it turned out most of it IS/was in my head, literally in the form of Dawson's Fingers)

Hopefully our regulars as well as new newbies will find us in our new location. If you think about it, us being newbies, maybe we can help, support and encourage Limbo Islanders in our new home on MS world. Another thing is it should be a lot EASIER to find our regular weekly threads. No more searching a vast ocean looking for our rest area.

Gomer Sir Falls-a-lot

[alishape]

I liked it better when we were all mixed in with everybody else.

Does anybody know how you can tell if you are having a flare? This is my first summer since diagnosis, so I'm not sure if I feel extra bad becasue of a flare or because of the heat. It is supposed to hit 100 degrees today.

Maybe I should go back to Philly for another cheese steak, lol.

[Kraheera]

Well, it's a week since I started Amantadine, and I have to say... THANK GOD.

Yep. I still feel a little groggy in the mornings, but I don't feel 'dead'. I can actually get up and move. I can actually REMEMBER telling my daughter to do something. I still occasionally have to rest or my cog fog gets bad, but I don't feel like I have to go to sleep 'right now or else'.

I haven't tried 'pushing' myself or anything, not yet. It's just nice to be able to get around the house. If this goes on for a month I will be sending my neuro some good cookies or something. Because I haven't felt this awake in months.

[momof8]

I "poked my head in" one of the old threads, but I think it got buried fairly quickly.

I've not been checking in around here for a while, but thinking maybe some of you will remember me??

Had my first Tysabri infusion yesterday.

I'm currently working out what I want to do in terms of diet/exercise to just be generally healthier....but I feel like if I'm going to make some changes, I may as well make some "MS friendly" changes. Curious what others do in terms of diet?

[jessica_]

I was diagnosed June 6th, about two weeks ago.

I go to see a specialist this Monday June 25th, then go back to my regular neurologist in a week or two to pick out which injection I'm going to take.

I'm just waiting for it to all hit me.