i have a frustrating problem with muscle spasm- but the spasms are not constant, just when they do occure they are severe and painful
the most frustrating ones are in my hands, certain moves such as holding a pen or pencil (typing is fine) or peeling vegetables etc after a few minutes will lead to severe spasms in which my fingers and lock in extension and the thumb is kind of locked across the palm of my hand- i can gradually massage it loose but then it will take very little to trigger it again for the next hour or so- so far the only thing that has been at all helpful is to basically break up my kitchen task so that i am not holding vegetables or peeler for long enough to trigger in the first place but it means that meal prep is slow.
i get the same kind of muscle locking in other muscle groups always due to repeated use but less of an issue than with my hands.
even having my supra pubic catheter changed is an issue, removing the old one will trigger severe spasms that are extremely painful and then make it very hard for my continence nurse to replace the new one- initially it was so bad i had to go back to my urolgoist for changes as they could not remove the old catheter, the muscles would clamp onto it causing extreme pain- now we have worked out a system of me taking a large dose of oral valium before the procedure and they use a lignocaine jelly locally - it is still painful but bearable
all the issues i have with spasms are similar though, i do not have constant spasticity just really severe spasms to the point of muscle locking with certain triggers. i have tried oral medications and get some help from baldder spasms with probanthine but baclofen has not helped - avoiding triggers is the only thing that has worked really and that is really hindering me around the home
have you any suggestions for this kind of all or nothing spasming??
the most frustrating ones are in my hands, certain moves such as holding a pen or pencil (typing is fine) or peeling vegetables etc after a few minutes will lead to severe spasms in which my fingers and lock in extension and the thumb is kind of locked across the palm of my hand- i can gradually massage it loose but then it will take very little to trigger it again for the next hour or so- so far the only thing that has been at all helpful is to basically break up my kitchen task so that i am not holding vegetables or peeler for long enough to trigger in the first place but it means that meal prep is slow.
i get the same kind of muscle locking in other muscle groups always due to repeated use but less of an issue than with my hands.
even having my supra pubic catheter changed is an issue, removing the old one will trigger severe spasms that are extremely painful and then make it very hard for my continence nurse to replace the new one- initially it was so bad i had to go back to my urolgoist for changes as they could not remove the old catheter, the muscles would clamp onto it causing extreme pain- now we have worked out a system of me taking a large dose of oral valium before the procedure and they use a lignocaine jelly locally - it is still painful but bearable
all the issues i have with spasms are similar though, i do not have constant spasticity just really severe spasms to the point of muscle locking with certain triggers. i have tried oral medications and get some help from baldder spasms with probanthine but baclofen has not helped - avoiding triggers is the only thing that has worked really and that is really hindering me around the home
have you any suggestions for this kind of all or nothing spasming??
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