Well its off to see the Neuro. I've been on gilenya since December and it was great at first. Then I had what I thought was 3 seperate relapses. But thanks to MS World support staff, I learned it was one relapse three different episode's.
My lastest problem has been Mouth Sore's.(canker sore's) It has been two months of frustration. When I get them, my Neuro takes me off the gilenya until they heal. Then I start the med again and a week later they're back.
Today My Nuero took me off the Meds for good. He wants to see me next week to discuss other med. I''ve been on Copaxone, Avonex, Gilenya, and Tysabri ( which I absolutely loved, darn PML) I don't know what else to try. Maybe Quit Meds all together? Maybe I'm actually in remittion and just don't know it. LOL
My lastest problem has been Mouth Sore's.(canker sore's) It has been two months of frustration. When I get them, my Neuro takes me off the gilenya until they heal. Then I start the med again and a week later they're back.
Today My Nuero took me off the Meds for good. He wants to see me next week to discuss other med. I''ve been on Copaxone, Avonex, Gilenya, and Tysabri ( which I absolutely loved, darn PML) I don't know what else to try. Maybe Quit Meds all together? Maybe I'm actually in remittion and just don't know it. LOL
Comment