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    first dose

    My first dose of Gilenya is on Monday. I am so nervous!!
    Michelle

    #2
    MichelleHarper,
    My first dose is on Tuesday. I am nervous as well but anxious to start it.

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      #3
      I can't wait to start either. I'm nervous about the side effects. Hopefully I will be one of the lucky ones and have no side effects! Good luck to you!! Be sure to share your experience of it.
      Michelle

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        #4
        Hello, how long after paper work is done,labs,ekg,eye test are done do you get your first dose? I have had all that done, got the call from Gilenya yesterday confirming benefits and copay, starter pak,etc. She was going to be faxing my MS specialist all of that yesterday right after we talked.

        What's next?
        Thanks
        Meissie

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          #5
          After I was approved I had to call my neuro for my first dose observation. It took a month to get me in but that's because my doctor has so many patients. Oh and you have to have the gilenya mailed to you before your appointment.
          Michelle

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            #6
            Okay. My first dose is going to be mailed to my neuro's office and then they are going to call me I was told.

            Meissie

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              #7
              I plan on bringing my kindle fire so I'm not bored.
              Michelle

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                #8
                Tomorrow is my first dose! I'm so nervous!
                Michelle

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                  #9
                  Hope it goes well for you. Keep us posted.

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                    #10
                    My first dose was uneventful. The only thing is... they only checked my pulse and bp before I took the pill and right before I left. I had shortness of breath in the middle of the night and sore throat and cough. Still have some shortness of breath.
                    Michelle

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                      #11
                      Have some chest pains, so the doc is taking me off gilenya
                      Michelle

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