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    gluten free diet stories?

    I would like to hear other's experiences in giving up gluten. Do you think it is helping? Why or why not? and any other information you can share. I learn so much by reading what others are going through.

    I have a very healthy diet but do eat gluten products. No dairy, hardly any sugar (if any at all), LOTS of raw fruits and vegetables, all whole grains, very little (if any) meat, and so on. To give you a good idea of my meat consumption, I've had three very small portions of meat in the last several weeks (two were deer and one was beef). I cook everything 'from scratch' and do not go out to eat.

    I have been really considering giving up gluten to see if that helps. I've heard it can help with fatigue?? So, it would be a blessing to hear what others have to say who have 'been there, done that'. Thank you for your time.

    Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
    Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
    EDSS of 5.5, sometimes 6.0

    #2
    Originally posted by jjs View Post
    I would like to hear other's experiences in giving up gluten. Do you think it is helping? Why or why not? and any other information you can share. I learn so much by reading what others are going through.

    I have a very healthy diet but do eat gluten products. No dairy, hardly any sugar (if any at all), LOTS of raw fruits and vegetables, all whole grains, very little (if any) meat, and so on. To give you a good idea of my meat consumption, I've had three very small portions of meat in the last several weeks (two were deer and one was beef). I cook everything 'from scratch' and do not go out to eat.

    I have been really considering giving up gluten to see if that helps. I've heard it can help with fatigue?? So, it would be a blessing to hear what others have to say who have 'been there, done that'. Thank you for your time.
    Kudos for your generally excellent diet!

    As for going gluten free, the things I noticed right away were less fatigue, better mental clarity, and greatly improved gastrointestinal function.

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      #3
      Gluten-free, sugar-free

      I have been gluten free and sugar free for about 6 months. Unfortunately I don't know if the diet has had any effect because I started Tysabri around the same time, but all my symptoms are gone. I will say that I noticed when I would eat sugar that my symptoms (vision, weakness, balance) would get worse when I used to eat a lot of it. I've also noticed that my allergies have gotten better and I believe that the gluten might have been a trigger. Surely it can't hurt. At the very least I'm about 5 lbs. lighter, feel healthier, and someday hope to go med free. There is a really good book called "The MS Recovery Diet" that can give more info on this diet.

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        #4
        Feel better and making healthier choices

        I've gone gluten, dairy and sugar free (fruit ok) and my mom has gone gluten free in support of me. Early on I accidentally ate gluten two days in a row and felt worse for several days after. The last few days my mom was eating a nutty non-gluten free loaf of bread I bought her and she has felt pretty bloated and lethargic. So... for whatever that is worth. I really liked Tara's rec'd to try it for 60 days and see how you feel.
        RR spinal cord predominant MS; Doing well on Tecfidera for 3+ years

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          #5
          4 Yrs Gluten Free!

          My diagnosis came in 2006 after being sick for decades with weird symptoms. I chose to opt for diet rather than drugs. Chose going gluten free after reading Anne Boroch's "Healing MS" and Sawyer and Bacharach's "MS Recovery Diet".

          After being completely gluten free for one month I realized I was having "less bad days" after two complete months of being gluten free I couldn't remember having a bad day! And I just kept getting better and better from there!

          It's been 5 years since being gluten free and I have no MS symptoms and I have not had any exaccerabtions. I KNOW my body and I KNOW that as long as I don't eat gluten and keep green juicing I will be fine.

          I don't miss eating gluten, I've learned what I can eat and what I can't and I don't be deprived in the least. NOTHING tastes as good as feeling fabulous and healthy feels!
          ~joni
          Diagnosed with RRMS in 2006 but plagued with symptoms for 25 years. Currently taking no medications, treating with diet and supplements only and successfully.

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            #6
            Originally posted by jerseygirl55 View Post
            My diagnosis came in 2006 after being sick for decades with weird symptoms. I chose to opt for diet rather than drugs. Chose going gluten free after reading Anne Boroch's "Healing MS" and Sawyer and Bacharach's "MS Recovery Diet".

            After being completely gluten free for one month I realized I was having "less bad days" after two complete months of being gluten free I couldn't remember having a bad day! And I just kept getting better and better from there!

            It's been 5 years since being gluten free and I have no MS symptoms and I have not had any exaccerabtions. I KNOW my body and I KNOW that as long as I don't eat gluten and keep green juicing I will be fine.

            I don't miss eating gluten, I've learned what I can eat and what I can't and I don't be deprived in the least. NOTHING tastes as good as feeling fabulous and healthy feels!
            Hey, so I have gone 'gluten' free as well, and I feel 100% better than I have before, but I am scared to not take the meds. Although, after todays experience with feeling like total crap after my first rebif shot... its more tempting than ever to not medicate. I chose to do Rebif after copaxone didn't do its 'job' and I had multiple active lesions on my last MRI. But I haven't had any relapses, so I wonder if I could go without medication as well... what have your MRI's looked like? Have you had any MRI's??

            I do green smoothies, don't eat wheat/gluten or many other grains, I feel great, but like I said, I am still nervous about not using medication to help.. I guess just because of all the 'research' and 'results', but I am still new to MS, and am learning I REALLY don't like the medications.. I would love to hear more about your results from diet and suppliments..

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              #7
              Update

              I finally took the gluten-free plunge and wish I would have done it several years ago. I've been gf for about 3 months, minus a mistake in Mexico about a month ago. So far it seems to be helping with cognitive issues. I'm really not doing well right now BUT my mind is clear, so that's super nice!!

              Anyway, thanks for sharing your stories and I look forward to hearing more success OR failure stories once this post is resurrected.

              Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
              Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
              EDSS of 5.5, sometimes 6.0

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