Hello everyone!
I am new to the boards and was dx with RRMS in June 2009. I began Rebif 1 yr ago and experienced the typical side effects that I was warned about. I was told the side effects would dissipate after a period of time and not come back. My bloodwork has all been good apart from a slight decrease in my white blood cells but my MS Dr.has not been concerned as it is only a slight decrease.
After about 3 months of flu like symptoms, chills, headaches, sore throat and runny nose my symptoms disappeared and I was so happy and relieved. Then about two months later my symptoms came back full force and seemingly worse. This lasted for a period of a few weeks or more then completely disappeared.
For the past year I have been experiencing side effects in cycles and they seem to be getting worse or perhaps I am just less tolerant to the side effects because it is debilitating me. I am currently having a bad cycle. I have an extremely bad headache which is constant. I go to bed each night in pain and awake in pain. I feel sick to my stomach, have no appetite and feel like I have a sore throat coming on. On top of that fatigue. Is this normal?
I have an appt in December at the MS clinic a follow up to starting this drug therapy a year ago and I have one more blood test to do before my appt. with the neuro. The nurse at the clinic is nolonger there and so I have not been able to discuss this with anyone except my family dr. and she is monitoring me.
I am not so sure that Rebif is helping me and I dont know if the side effects are worth it. I am doing everything I can regarding a good diet and exercise to stay healthy and strong. However I am thinking that Rebif may not be the therapy for me.
Sorry for the long post and I thankyou for taking the time to read this. Any sharing of info or suggestions would be greatly appreciated.
Thankyou
Lori J
I am new to the boards and was dx with RRMS in June 2009. I began Rebif 1 yr ago and experienced the typical side effects that I was warned about. I was told the side effects would dissipate after a period of time and not come back. My bloodwork has all been good apart from a slight decrease in my white blood cells but my MS Dr.has not been concerned as it is only a slight decrease.
After about 3 months of flu like symptoms, chills, headaches, sore throat and runny nose my symptoms disappeared and I was so happy and relieved. Then about two months later my symptoms came back full force and seemingly worse. This lasted for a period of a few weeks or more then completely disappeared.
For the past year I have been experiencing side effects in cycles and they seem to be getting worse or perhaps I am just less tolerant to the side effects because it is debilitating me. I am currently having a bad cycle. I have an extremely bad headache which is constant. I go to bed each night in pain and awake in pain. I feel sick to my stomach, have no appetite and feel like I have a sore throat coming on. On top of that fatigue. Is this normal?
I have an appt in December at the MS clinic a follow up to starting this drug therapy a year ago and I have one more blood test to do before my appt. with the neuro. The nurse at the clinic is nolonger there and so I have not been able to discuss this with anyone except my family dr. and she is monitoring me.
I am not so sure that Rebif is helping me and I dont know if the side effects are worth it. I am doing everything I can regarding a good diet and exercise to stay healthy and strong. However I am thinking that Rebif may not be the therapy for me.
Sorry for the long post and I thankyou for taking the time to read this. Any sharing of info or suggestions would be greatly appreciated.
Thankyou
Lori J
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