tired of testing and no DX

Hi Everyone,

I am so frustrated with all the testing, bloodwork, MRI's, EVP etc...
I had the EVP test done again, I thought for sure it was going to be positive for ON. I had two episodes lasting several days, of left eye pain made worse with eye movement. I thought for sure, I was finally going to be diagnosed. I had 3 MRIs, two of the them mentioned MS and the first one stated it could be vascular or demyelination. I had numerous blood work done to rule out anything else.

The last MRI done a few weeks ago had more brain lesions than the previous one done about 8 months ago, and one lesion enhanced.

I do not enjoy going to doctors, being tested and have no answers. My symptoms are definitely not my imagination but you get to the point where you feel why should I even bother with all of these tests. I am starting to think, I should ignore the symptoms and deal with it. Of course, I don't want MS but I wish I had an answer to my sympotms.

[valeriem2220]

I am right here with you. I am going through the same thing right now. It seems all I do on my days off of work is visit the hospital or Drs office for more tests.
I am very glad that I have a Dr that is doing all of this for me and not willing to "jump" into a diagnosis. My neurologist says "He wants to look at the trees before he looks at the entire forest" I really do like that about him, but yes I am getting frustrated with all of the tests I am having. I know it is for the best though and I just keep reminding myself "This is what you wanted Val, a Dr that would listen and get to the bottom of it"
I knew it wasn't going to fun or easy and I am just trying to keep my head up through it all.
Good luck to you and remember you aren't alone in this...I do believe most of us have been through it....

[browneyedlana]

I am in the same place.It is very frustrating.I can only offer encouragement as I do not have an anwer and I say the same things.I do not want MS but I do not want to be looked at as some crazy attention seeking freak either. I have come to realize I know in my heart what is real and my sx's are real just because a doctor can not name the dx's is not my shortcoming.I try not to think about it much.

Good luck to you both and God bless!

[jskmssss]

Valeriem220 & browneyedlana

Thanks for your support. I guess we all have to go thru this.
You are correct, we are fortunate to have a neuro who is being
very thorough. Fortunately my doctor doesn't make me feel like a hypochondriac. My first neuro is the one who sent me to a MS specialist, the MS specialist is the one that is sending me for all these tests.
I just try not to discuss all the sxs, tests and dr. appointments with my friends, family or co-workers
because I don't think the average person would understand.
I am glad we have a place to vent and express our frustration with others who understand what we are going through.
Good Luck to both of you. Hopefully one day, we will be told we don't have MS and the testing will stop. Hang in there.