Hi everyone,
I had two LP's in the time span of a year already, last one being done in June.
Last MRI (both spinal/brains- in march.
And some EP's only of the leg (Motor evoked) and the eyes.
But I found those really unprofessional.So perhaps they're not done that well.
Anywho, all of that was negative and also EMG's.
Now, I have many symptoms and basically all of them.
Like the unexplained eyepain and so on with movements, they haven't managed to catched it yet to see inflammation.
But I know this can also go mild and can't be 'seen' sometimes.(ON)
The other symptoms include: neurogenic bladder(urgency, frequency, bladder emptying issues)
-Paresthesias all over body(burning, tingling), mainly limbs and tongue/mouth.
-Numbness all over, mainly limbs(feet, hands), face, mouth.
-Colourvision disturbance
-Eyepain movement with episodes, also flickering lights in eyesight
-Balance
-Memory is horrible
-walking issues
-Speech
-Constant and unequal pupil dilation, so big that you can't see my eyecolour or barely, also a slow reflex to light
....
And of course there's a lot more, but I'm a bit tired and I wanted to mention the most 'recognized ones' or ones that most people would mention having MS.
The thing is, right now I have horrible headaches on a constant basis again.
(The symptoms I listed are not connected to this)
I have a history of migraines but I'm on a drug for those and haven't had any for a while or sometimes.
When I did get headaches recent, it was usually due to this eyediscomfort which is listed as ON and I do experience the listed symptoms.
Typical eyemovement pain and pain above the eye/pressure (headache, nausea)
The headaches is also a lot of pressure and my eyes hurt a lot when moving them, again flickering lights in eyesight(side vision)
It's just that, my eyepupils are once again extremely enlarged also.
I was wondering if this could suggest that there are lesions going on in my brains or inflammation/damage?
Although they haven't found anything yet..
I know something is not right.
I do already have Lupus and Sjögren but the neurological problems could be caused by the Lupus, although there is no 'specific' problem I have that would point to neurological issues to do with Lupus (like the bloodvessel inflammation/bloodclot syndrome)
Thanks in advance!
I had two LP's in the time span of a year already, last one being done in June.
Last MRI (both spinal/brains- in march.
And some EP's only of the leg (Motor evoked) and the eyes.
But I found those really unprofessional.So perhaps they're not done that well.
Anywho, all of that was negative and also EMG's.
Now, I have many symptoms and basically all of them.
Like the unexplained eyepain and so on with movements, they haven't managed to catched it yet to see inflammation.
But I know this can also go mild and can't be 'seen' sometimes.(ON)
The other symptoms include: neurogenic bladder(urgency, frequency, bladder emptying issues)
-Paresthesias all over body(burning, tingling), mainly limbs and tongue/mouth.
-Numbness all over, mainly limbs(feet, hands), face, mouth.
-Colourvision disturbance
-Eyepain movement with episodes, also flickering lights in eyesight
-Balance
-Memory is horrible
-walking issues
-Speech
-Constant and unequal pupil dilation, so big that you can't see my eyecolour or barely, also a slow reflex to light
....
And of course there's a lot more, but I'm a bit tired and I wanted to mention the most 'recognized ones' or ones that most people would mention having MS.
The thing is, right now I have horrible headaches on a constant basis again.
(The symptoms I listed are not connected to this)
I have a history of migraines but I'm on a drug for those and haven't had any for a while or sometimes.
When I did get headaches recent, it was usually due to this eyediscomfort which is listed as ON and I do experience the listed symptoms.
Typical eyemovement pain and pain above the eye/pressure (headache, nausea)
The headaches is also a lot of pressure and my eyes hurt a lot when moving them, again flickering lights in eyesight(side vision)
It's just that, my eyepupils are once again extremely enlarged also.
I was wondering if this could suggest that there are lesions going on in my brains or inflammation/damage?
Although they haven't found anything yet..
I know something is not right.
I do already have Lupus and Sjögren but the neurological problems could be caused by the Lupus, although there is no 'specific' problem I have that would point to neurological issues to do with Lupus (like the bloodvessel inflammation/bloodclot syndrome)
Thanks in advance!
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