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Liberation money better spent on research

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    Liberation money better spent on research

    A couple of years ago, I did an online questionaire for people with a chronic illness. The one question I remember most was " If you were offered a pill that would either cure you or kill you, at what odds would you take the pill? After alot of thought, I decided that if the odds were 1 in 10,000 that the pill would kill me, I would take the pill. Stated in a recent newspaper, about 1000 Albertans have had the Liberation Treatment and sadly,there has already been a death. The odds are just too high.
    The last people to have it done, spent about $14,000. That means that Albertans have spent at least $14,000,000 on a treatment that has, to the best of my knowledge, provided temporary relief and shown temporary improvments for people with MS.
    Until a cause for Multiple Sclerosis is found, a cure remains just a dream and the Liberation Treatment remains nothing more than an expensive Aspirin.
    Imagine how much further ahead research and trials could be with $14,000,000 invested just in Alberta and how many more people would be helped.

    #2
    Originally posted by korgc35 View Post
    A couple of years ago, I did an online questionaire for people with a chronic illness. The one question I remember most was " If you were offered a pill that would either cure you or kill you, at what odds would you take the pill? After alot of thought, I decided that if the odds were 1 in 10,000 that the pill would kill me, I would take the pill. Stated in a recent newspaper, about 1000 Albertans have had the Liberation Treatment and sadly,there has already been a death. The odds are just too high.
    The last people to have it done, spent about $14,000. That means that Albertans have spent at least $14,000,000 on a treatment that has, to the best of my knowledge, provided temporary relief and shown temporary improvments for people with MS.
    Until a cause for Multiple Sclerosis is found, a cure remains just a dream and the Liberation Treatment remains nothing more than an expensive Aspirin.
    Imagine how much further ahead research and trials could be with $14,000,000 invested just in Alberta and how many more people would be helped.
    I agree.

    I know that people with MS want to have hope and try this new procdure, but I just think it is too risky, for what is really as yet unproven benefit.
    I have my doubts about the procedure as it's creator is not even in the field of neurology.
    Having said that I do wish those who wish to try it well, and lots of good health and happiness.
    Diagnosed RRMS 8/8/03
    Commenced Rebif 5/08
    Started Tysabri 5/09

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      #3
      We live in South Western Ont. and my boyfriend is currently contemplating entering a clinical trial at the University of Buffalo. He is 29 and his MS onset and progression was very quick (at about age 19). He is in a wheelchair and is unable to work. I know there are some risks, but it is also hard to decide what to do when we want so badly just to have a regular life that most other people our age would take for granted. At this point if any symptoms can be improved it seems like it could be worth it.

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        #4
        snake oil salesmen make me sick

        Until someone finds a cause for MS and the scientific community replicates the finding, and then someone designs a treatment that actually addresses that cause and then other independant scientists replicates those results and it gets appropriate approval by more than one ethical body that specifically specialising in overseeing what is a real treatment or not and makes sure it's safe

        Anyone who claims to have a cure for MS is full of it and probably a fraud and given the risks to desperate people should be thrown in jail for their unacceptable cruelty.

        This is just like people who sell tap water to cancer patients and then tell them they don't need chemo/surgery. No, it's just tap water. Stick with the program and you may do ok or you may not, don't stick with the program and you'll definitely suffer as tap water only treats dehydration and nothing else.

        Eventually some very clever people will figure the disease out, but that day isn't here yet. It takes time and effort and lots of it. From patients, doctors and scientists alike....snake oil salesman being none of these.
        ---------
        Wishing everyone luck and as many good days as possible.

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          #5
          Liberation Cure....HAAAA

          FYI The reality of the Liberation surgery is that it provides immediate relief but all symptoms return in about 6 months.

          Not to mention the risks and potential for staring at dandelion roots.....

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