I have had MS for 30 years, although I was only diagnosed two years ago. My symptoms are mostly sensory, with a little weakness, and my hands are a little clumsy due to numbness. I also have fatigue sometimes, and my stamina for exercise is low.
So my MS is invisible. I get the feeling people around me are tired of hearing about it (not that I talk about it alot). I felt a wierd buzzing last night, and mentioned it to my husband, who sort of grunted an acknowldegment.
It is wierd living with these symptoms. They are with me all the time. I am very lucky, as I am still mobile, and functioning fully, for the most part. I just feel alone that no one knows how I feel, all the time. It feels like no one rreally cares, or realizes just how much it does impact me. I want to feel my arm and hands again normally! It makes me feel claustrophobic! My legs and feet feel numb-ish all the time.
I also had a lot of other health issues over the past two years, including emergency surgery with a colostomy!! due to diverticulitis, and then surgery to reverse the colostomy, and repair the hernia caused by the colostomy.
I am 55, and fighting an uphill battle in terms of fitness. I was never very...um...athletic, and always a bit chubby, but now I am struggling with a malformed abdomen from all my surgeries, and having been somewhat sedentary throughout the past two years. The hernia still requires careful exercise, very careful.
I just feel alone. I also feel guilty for whining, as I do know how lucky I am. But at this very moment, I am not feeling lucky....
So my MS is invisible. I get the feeling people around me are tired of hearing about it (not that I talk about it alot). I felt a wierd buzzing last night, and mentioned it to my husband, who sort of grunted an acknowldegment.
It is wierd living with these symptoms. They are with me all the time. I am very lucky, as I am still mobile, and functioning fully, for the most part. I just feel alone that no one knows how I feel, all the time. It feels like no one rreally cares, or realizes just how much it does impact me. I want to feel my arm and hands again normally! It makes me feel claustrophobic! My legs and feet feel numb-ish all the time.
I also had a lot of other health issues over the past two years, including emergency surgery with a colostomy!! due to diverticulitis, and then surgery to reverse the colostomy, and repair the hernia caused by the colostomy.
I am 55, and fighting an uphill battle in terms of fitness. I was never very...um...athletic, and always a bit chubby, but now I am struggling with a malformed abdomen from all my surgeries, and having been somewhat sedentary throughout the past two years. The hernia still requires careful exercise, very careful.
I just feel alone. I also feel guilty for whining, as I do know how lucky I am. But at this very moment, I am not feeling lucky....
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