Can I come Back...AGAIN???

[akafearless]

Check again pls

I take Avonex, have private insurance, make sufficient income (or did) and they still pay my copays.

[Sissy]

OMG ! Who did yours ? It has been several yrs ago since I tried. I will try again ! I am hoping my Neuro will put me on something for the spasticity real soon and it would be a major help if I could get help with the co-pay so I can afford to take it the way I need to.I have been in so much pain with this. About 2 mo now.

I'm sorry for taking so long to thank you for your reply. I thought no one else had posted since my last post. I am getting so much help here!!

I Pow-Wow's !

[Kimba22]

Sissy,

FYI, here is some info with phone numbers for patient assistant programs, you do need to try again!

Some programs depending on the DMD are much better than others, but they do exist ... you have to call yourself to find out about them & apply (sometimes the neuros office also needs to fax info). There are co-pay assistance programs available for the DMDs if you have insurance, but you must be the one inquiring and starting the footwork!

http://www.msassociation.org/program...e_Guide.pdffor them.

http://www.nationalmssociety.org/abo...ams/index.aspx

http://www.betaseron.com/patients/betaplus/

Gilenya has a support program in place as well now for co-pay assistance (This is only available for the first year of treatment). A maximum Novartis contribution of $800 per prescription for a maximum of $10,400 per calendar year.

Phone number for Gilenya Support Program is:
1-877-408-4974.

Regarding your spasticity, you might benefit from a different drug (instead of, or added to the Tizanidine.) Many of us get relief from an older drug, Baclofen (generic for Lioresal):

http://www.bing.com/health/article/g...ion?q=lioresal

Regarding pain, if you don't find relief from meds your neuro's or general practitioner's prescriptions, find a dr. who specializes in pain management.

Ask, ask, ask. Read, read, read. Learn, learn, learn as much as you can ... and you should look for a new neuro.

There are neuros who have an "interest" in MS (some are more knowledgeable than others, but they treat several neurological disorders), and MS Specialists (who limit their practice to treat only MS ... or at least, only 2 - 3 disorders). You can find them by googling MS Specialists or MS Clinics in your area.

Good Luck!

[Sissy]

Hi everyone!
I wanted to leave an update, I went to see my Neuro and he was taken aback at how I had gone down hill since I had last seen him. He put me on Baclofen and we talked about DMDs. He wanted me on something as soon as he could run some tests. So I followed some of the link's Kimba gave me and did manage to get all the help I needed for Gilenya.

I took my first dose yesterday. I posted in the "Gilenya" area. Everything went well! I am determined to feel better! I tried to get help with other things ( diabetic syringes and Novalog needles) but was turned down. So I will have to keep reusing them until I can find away to help pay the $58.50 a month for them .

I filled out paperwork with the MS ORG. to help me get a rolator ( walker with a seat). But have not heard from them yet. Thank you so much for caring everyone!!