I know that the VA has specialty clinics for MS. Has anyone been to one? What are the benefits? Can I just call one and request an appointment?
My primary care provider is totally clueless about MS and MS patients in the VA system. I had to switch a seizure medication because it is not on the formulary so she asked that I get my neurologist's permission to change it to Keppra. After I did that she asked me to call my neurologist back and find out the appropriate dosage. I also got that information to her. I have had to ration my medicine while she gets it together and I still may run out.
I had tried to call her last week because I am sure I am having an exacerbation. I waited until I had the symptoms for a full week to make sure. Her nurse called back and told me that if I am having an increase in symptoms that I should call my private neurologist.
They did put in a consult for a VA neurologist, but I don't have an appointment, yet.
I don't want to jump the gun and call the patient advocate but I need some help.
My foot drop has become severe and the pain (which is usually tolerable) is intense. My hand is doing the jerk and my vision is a mess (never had vision issues before).
My primary care provider is totally clueless about MS and MS patients in the VA system. I had to switch a seizure medication because it is not on the formulary so she asked that I get my neurologist's permission to change it to Keppra. After I did that she asked me to call my neurologist back and find out the appropriate dosage. I also got that information to her. I have had to ration my medicine while she gets it together and I still may run out.
I had tried to call her last week because I am sure I am having an exacerbation. I waited until I had the symptoms for a full week to make sure. Her nurse called back and told me that if I am having an increase in symptoms that I should call my private neurologist.
They did put in a consult for a VA neurologist, but I don't have an appointment, yet.
I don't want to jump the gun and call the patient advocate but I need some help.
My foot drop has become severe and the pain (which is usually tolerable) is intense. My hand is doing the jerk and my vision is a mess (never had vision issues before).
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