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jc virus in urine- switched to copax. not working now what???

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    jc virus in urine- switched to copax. not working now what???

    just want to pose this out there. I have jc in the urine and my dr suggested we switch. Anyone else?? I switched to Copaxone and 6 mo later - 3 new lesions - my equilibrium is shot to heck and can't walk far without falling over.


    My question is what do i do now switch to Gilenya or go back to Tysabri??


    Is anyone else being pulled off Tysabri when jc is discovered in urine?? appreciate any feedback you're willing to share

    Thank you

    #2
    I have been on Gilenya since mid Dec and doing great so far. With the positive JC virus I am not sure what I would do. PML is scarey but so are the unknows of Gilenya. Catch 22.

    I think if it were me I would try the Gilenya.

    CrazyCatLady
    MS Does Not Define Me.....My Love of Tea Does! LOL!

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      #3
      I'd suggest giving Low Dose Naltrexone (LDN) a try for six months and see how you do. LDN is not scary at all. If you see no benefits from LDN after six months, then return to Tysabri or Gilenya.

      LDN is completely non-toxic, thousands of people with MS take it with good results, and it has been shown particularly effective if started early upon MS disease diagnosis.

      Visit:

      www.LDNaware.org
      www.lowdosenaltrexone.org
      www.LDNers.org
      www.LDNscience.org
      www.LDNresearchtrust.org
      www.LDNdatabase.com

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