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    Opthalmologist appointment+Scans

    Hi everyone!

    Today I had my Opthalmologist appointment.

    I told her about my neurological issues and the constant pupil dilation that I am experiencing.

    She immediately took a look at that and saw it too.
    Tested it with her lights and said I have very slow pupil reflexes, they do react though but very slow.

    Took a further look and all seemed fine but then she tested my vision with the letter test from a distance-
    Couldn't read it all well so vision is a bit less than 6 months ago.

    Possibly this can be due to my pupils being so enlarged all the time.
    She also tested my colourvision, wasn't too good either.
    Have got an issue with red and green as I was aware of and told her before she did the test aswell.

    She said it is soemthing with my optic nerves it seems and I asked if it'd be wise to see a Neuro-Opthalmologist for this.
    Said it definitely would be good to do that as it needs further investigation but she doesn't have the equipment and such at the hospital there-

    So best to go to the specialised hospital where I go to every few months, all my files and such are there too.

    I also need to get a VEP done as she said, was hoping she would say that.

    Called Neuro-Opthalmology but soonest is 7th of June, yikes!
    Way too long, same with Chidren Neurology which is 4th of July.

    I am calling Rheumy next week, possibly he wants to see me and hopefully he can get me in sooner by him than 29th of April.
    Or else just ask him to get me in sooner at Neurology and Opthalmology already.

    Fingers crossed.

    But I am very pleased I've got proven right and am another step further on the right path.

    I also asked her about he dizziness having a connection with my visual issues but she said it might most likely be an issue with my
    "Balance organ"?

    Not sure what that is but I am guessing it is a seperated problem, also neurological related or so.
    I cannot stand with my two feet together, eyes closed or open-
    I always lean to the left or right and almost end up on the floor.

    I know it's not really Vertigo as it's not a spinning room sensation.
    More lightheadedness and feeling of passing out/fainting.

    But we'll see how it goes, just waiting to call Rheumy on monday.

    Aswell brain MRI turned out to be normal, need to call regarding spinal cord one on tuesday.
    Seemed normal to Neuro aswell but she wanted to wait for the report of Radiologist to make sure.
    Wasn't too pleased to hear that but I guess it can be Polyneuropathy like my Rheumy thought and such.(That is caused by the Lupus)

    Atleast I am glad something showed up today as I expected.

    #2
    Hi Shani.....

    Even people with normal vision have less visual acuity when their eyes are dilated. Even camera lenses have less depth of field (focus range) when they are wide open, so with your dilated pupils, some unwanted blurryness is to be expected.

    My color vision varies as well.

    It's good you are going to get the VEP test, I ahd it aand if backed up the MS Dx, same for the LP, lumbar puncture to test CSF fluid.

    It's sounds like your eye doc is doing the best she can and helping you get good care of your eyes. Iwas a new eye doc a couple years ago that opened my MS can-of-worms, after decades of complacent docs, that led to my formal MS Dx. My other docs, famdoc included suspected MS but had never told me, that is till the new eye doc brought the issue to light.

    DocGomer Doctor of, Been There, Done That..

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      #3
      You should get some results with the neuro opthomologist, I'm sure. Too bad about waiting until June!

      There are balance receptors in the body (I can't remember the name, proprio-something, I think) that MS can mess up. Mine are out of kilter, too, complicated by numb feet. I lose my balance very easily and have to be careful where I place my feet, the rare times I walk.
      Courage doesn't always roar. Sometimes, it is the quiet voice at the end of the day that says, "I will try again tomorrow."

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        #4
        Thank you both for the responses.

        Hoping that my doctor can get me in sooner than July-June, when I call on monday.

        It'll be great if the VEP shows something.

        Not guaranteed it'll be MS but atleast a clue would be nice.

        Comment


          #5
          Another trick that you could try is to have your opthamologist, doctor, etc. call up and try to get you in earlier. Sometimes that works. I had to wait a month and thought that was bad.

          Keep us posted.

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