Been on all the CRABs & Cytoxan. Just tested positive for the Neutralizing Antibodies (NABs) while on Avonex which has been pretty stable for 4 years.
Ty isn't an option because of the Cytoxan history. Dr mentioned Gilenya as the only choice, besides nothing with pulse steroids and Cytoxan again if it takes off.
Gilenya prescribing information is pretty dang scary when reading it all...and then thinking about the fact that it's been on the market for such a short period and therefore doesn't have as much safety data.
With a family to think about, I sort of feel guilty if I do nothing at all. I also feel worried for them if I do something and have more bad luck. All of the CRABs have caused my body to go into a defensive posture against them. Cytoxan worked, but it also put me out of commission for a 1-2 week period each month. Not to mention there is always risk with the chemo drugs.
SO, where to go now? I need some opinions to help me with this decision. Thanks in advance.
Ty isn't an option because of the Cytoxan history. Dr mentioned Gilenya as the only choice, besides nothing with pulse steroids and Cytoxan again if it takes off.
Gilenya prescribing information is pretty dang scary when reading it all...and then thinking about the fact that it's been on the market for such a short period and therefore doesn't have as much safety data.
With a family to think about, I sort of feel guilty if I do nothing at all. I also feel worried for them if I do something and have more bad luck. All of the CRABs have caused my body to go into a defensive posture against them. Cytoxan worked, but it also put me out of commission for a 1-2 week period each month. Not to mention there is always risk with the chemo drugs.
SO, where to go now? I need some opinions to help me with this decision. Thanks in advance.
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