24, Indianapolis, Indiana dx 3/3/2010
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TRYING TO MEET PEOPLE MY AGE 28
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31 here as well.
Hey Luke Duke. I am 31, so now you have a buddy. Diagnosed at 24, undiagnosed by a second opinion. Now being re-diagnosed by a 4002nd opinion.
Heading to the Univ of Penn once and for all to see if it is all the result of a traumatic brain/spinal injury 25 yrs ago or is MS. None of these yahoos ever checked spinal fluis or checked my entire spine, did all the EMGs and never used dye in any MRI.
Some of my symptoms: was an athlete. Was a hiker. Was a runner (thought running was stupid, but could do it). Endless energy. Always had backbpain from the fall, but on and off through the years. Had to stop sports all together in High School. I had dead on accuracy as a pitcher in baseball (then softball when baseball was for boys only), 2qw recruited as my HS shortstop when I was 8. All-Star, Traveling team soccer. I became clumsy. My muscles got weak, hurt, got tired. I would okay, then in bed for weeks. Each time it got worse, it never went back to where it was before. It progressed. They diagnosed me with fibromyalgia at 18 before it was a fad. That BS doesn't progress.
I am now 30. My only social life is my husband, my sister, the phone, and managing 16 adult baseball games a year. After working 8 hours, I sleep for 20 at times, but usually I cannot sleep at all. It takes sleeping pills, muscle relaxers and pain pills to knock me out. Wake up exhausted. Vitamin B under tongue when I have to work.
I have had dozens of rhizotomies to sever the nerves in my neck. Right now I am on pain meds, antidepressants for mood swings and sleeping, muscle relaxants for constant and worsening spasm. Worried about fatigue meds as I am an insomniac. That part of my brain that shuts off was damaged. Migraines controlled with rhizotomies, but the insurance cover stopped paying except every 6 months. Just had epidural to help. Steroids help, but I have had medically enduced Cushings. Have to watch overusing. I have a clotting disorder thought to be Von Willebrands since it runs in the family, but just rules out. Cannot take anti-inflammatories. My memory is shot. Basic words. Short term okay. Long term gone. Anyone else sound like this? Wondering if it is all from my head injury.
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People my age ....
Hello,
My name is Kerri. I am 29 and new here. I am messaging from my hospital bed where I have been stuck for a week. My MS is really getting me this time. Its a fairly new thing for me having been diagnosed in 2009. Its very scary. i woke up today yelling for a nurse because I couldnt move my legs. I am looking for some support and advice. Im in denver Colorado. Anyone out here
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Connecting 1-on-1 with others.
Hey everyone, I've noticed several of you are looking to connect with others in your same age range that share this diagnosis. Please google Outdoor Mindset. If you have a passion for the outdoors and are looking for a connection with others; register and sign up for the Guide Program. Especially if you're located in Colorado!
Kyle
Outdoor Mindset dot org.
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Understand!
Originally posted by MsKerriCross View PostHello,
My name is Kerri. I am 29 and new here. I am messaging from my hospital bed where I have been stuck for a week. My MS is really getting me this time. Its a fairly new thing for me having been diagnosed in 2009. Its very scary. i woke up today yelling for a nurse because I couldnt move my legs. I am looking for some support and advice. Im in denver Colorado. Anyone out here
As for everyone else on here, I'm in Chicagoland area.Kari
Diagnosed RRMS March 2007
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