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Let's have some fun; stupid thing someone has said about dealing with MS

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    #16
    Is MS contagious?

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      #17
      Gosh I agree there are so many ressponses people give. Some are quite genuine, some is plain ignorance and while others are just.......mean!

      Most come from my co-workers, who really dont get the fatique issue...."im always tired too....do you get enough sleep?"

      I need a cane for balance and one said "why do you need a cane, you dont look sick....what do you mean by balance issues...Im clumsy too!"

      Again there are so many, Im just very thankful for my family and friends that do understand and of course MSW to share all of our experiences and know we are not alone!!!

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        #18
        once, i ran into the wall while in my wc and was asked "does that hurt or do you get used to it". huh
        hunterd/HuntOP/Dave
        volunteer
        MS World
        hunterd@msworld.org
        PPMS DX 2001

        "ADAPT AND OVERCOME" - MY COUSIN

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          #19
          line now a joke

          This response wasn't for the MS dx, but rather when I was expressing to my dad the frustration at injection site reactions and pain several months into giving myself the shots. His response: "Well, as someone once said, JUST GET OVER IT."

          I know that he likely just didn't know what to say, but as I'm not known as a complainer (just the opposite!), the lack of sympathy coming from a parent was very hurtful at the time. Now, however, it has become a laugh inducing line from either my husband or myself, when we facetiously apply the "sympathy" to each other or when talking about others.

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            #20
            Originally posted by CasinoKathy View Post
            Hi Marie, welcome to MSWorld!

            In response to your question- hmmmm- there are so many

            1. maybe if you didn't spend time doing all your housework you wouldn't be so tired all the time!

            2. maybe if you didn't walk, your leg would be stronger!

            3. maybe if you got more sleep your brain could function better! (what the @#%^&$#)??

            Some people are just so clueless!!
            I read this and burst out laughing so loud and suddenly that my pug was shocked out of her snooze and ran straight into the Christmas tree! I think they'll both recover, although the bulbs are still swaying. LOL!


            I get a lot of "but you look so great!" to which I always reply, "well, it is better too look good than to feel good." I think sometimes people don't know what else to say, so they try to come up with something positive. I've stuck my foot in my mouth so many times that I try to let those things slide, especially when you know their intentions are good.

            What I don't get is the ones who splash cold water on you when you're having a good day. Like the time I was talking to an acquaintance about how blessed I felt that day, and then they responded with, "I had a friend who suffered in agony before he finally died from MS." (then just stared freakishly at me like I was a living time bomb) AWKWAAAARD! Looking back, I should have pretended to faint dead away in front of him. LOL
            dx Transverse Myelitis March/2008 - dx upgraded to RRMS June/2008
            Rebif June/2008
            Tysabri October/2010

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              #21
              "Well we are ALL sick - everyone has something."

              When I'm feeling good and zooming around the place doing as much as I can before I get "hit" again - coz you just don't know how long you've got: "You are going to over do it and end up back in bed!"

              Or when I end up back in bed after zooming around enjoying myself -"See. You over did it. I told you not to."

              I always say - And if I was feeling well but lay around in bed as though I was sick anyway and then was really crook next day, what would you blame it on then? And how good would I feel for wasting my time lying in bed waiting to be sick lying in bed! Just wasted a day of feeling good!

              "You sleeping AGAIN?"
              "You're ALWAYS sick!"
              "You're always sleeping!"
              "How are you feeling today?" I get tired of saying I'm just the same and instead just say I'm fine. Who wants to talk about being sick all the time?
              "But how are you REALY?"
              "Oh everyone gets that."
              "MS is proven to be an autoimmune disease. There are things you can do. YOu don't HAVE to be sick you know."
              (Really? I was kinda hoping I could just stay like this actually. I do so enjoy being ill.)
              "Why don't you see a doctor?"
              "YOu should see this guy I know at this clinic. He's really good."
              "You should try this stuff - it works."
              "Why don't you try my doctor?"
              "Why don't you try this doctor my friend goes to."
              (DO I LOOK LIKE I"M MADE OF MONEY? ARE YOU PAYING?)
              "Well I've told you what you need to do!"
              "Well have you seen that guy I gave you the number for?"
              "I bought you these. I described your symptoms to the lady in the health shop and she said she has had a heap of people in with those exact same symptoms and you should try these pills. They really work." (Thanks. I'll put them in the cupboard with the other twenty thousand bottles of stuff peope have given me.)
              Shall I go on....?

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                #22
                When I had to go from full time to part time work, I remember walking past a fellow coworker who looked up at me and said, "I wish I could go home at 2:00 p.m., too."

                I flatly said "I wish I could stay here and work."

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                  #23
                  Originally posted by twisterred View Post
                  When I had to go from full time to part time work, I remember walking past a fellow coworker who looked up at me and said, "I wish I could go home at 2:00 p.m., too."

                  I flatly said "I wish I could stay here and work."
                  GOOD ONE!

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                    #24
                    "Oh if you do have that, don't worry about it. My mom has some oils you can use that completely healed my high school English teacher."

                    Then I sort of backed up and walked away...
                    Jesi
                    Dx: unsure
                    Rx: Celexa, propranolol, prilosec, meclizine, fioricet, zofran, benadryl

                    Comment


                      #25
                      Originally posted by jesimae View Post
                      "Oh if you do have that, don't worry about it. My mom has some oils you can use that completely healed my high school English teacher."

                      Then I sort of backed up and walked away...
                      What the???...
                      Oh and my mum has some oils you can use to rub on your head and help you grow a brain ahahahaa

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                        #26
                        I've heard a lot of what you're posting too. DH has heard more, though. People scared him to death before he told me what they were saying so I could help him get better information.

                        The worst though was when my boss' superior called to see which DD I actually had. She thought she had heard MS first but then my boss told her it was Parkinson's so she was confused.
                        What if trials of this life
                        Are Your mercies in disguise?
                        "Blessings; Laura Story"

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                          #27
                          The stupid thing someone has said about dealing with MS was from a doctor!

                          I was looking for a new primary and during my first and only visit with her, among the list of MS symptoms I have that I told her about during the exam was ON.
                          And when finishing the visit she said that I should be using a walker because of my lack of depth perception!

                          OMG! Despite the fact that was few months into Ampyra and was doing much better, and ON only bother me when I got over heated, and walked into her office with out even a cane, she would have had me in a nursing home.

                          One understandably stupid thing people could have commented of was MS fatigue.
                          But in 9 years of having MS, no one has.
                          I know fatigue could be so easily confused with being tired or exhausted, I’m surprised I had not had any make a dumb comment.
                          Although maybe I missed them, my DW confused that she did not understand my fatigue until a MS seminar we went to about 6 years after my dx.
                          Give life meaning, live life by the 9 Noble Virtues.

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                            #28
                            Six months to live...


                            One of the students at school was talking to me before school yesterday and said, "My Mom's friend was just diagnosed with MS and the dr gave her 6 months to live, she's much worse than you..." I guess she was trying to make me feel better...ugh.
                            ~Patience~

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                              #29
                              "Maybe this is just temporary"
                              "How could it be that bad, that fast?"
                              And that's from family. I just want to scream when they say stuff like this. As if I would choose to feel this way.
                              Courage is NOT the absence of fear, it is going forward in spite of fear. Diagnosed 5/27/10

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                                #30
                                Well darn if I didn't have this happen to me again today! I was in conversation with an old friend from high school, and once she found out I had MS she says-
                                Well I know someone who has MS also.((of course you do))
                                It's not that bad for them!((Guess I am special))
                                and they still hold a full time job.((Really? Here we go!))
                                So Why are you on disability and they aren't? ((Don't have a clue))
                                Do you have a different kind or something?((Alien implant kind))
                                and I can't understand why you can't work and they can?((Gee, kick me when Im down))
                                Soooo..... people are ignorant to MS. I try to inform them, but sometimes it's not worth it.
                                The Best things in life....aren't things!

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