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Just took first MS pill (Gilenya)

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    Just took first MS pill (Gilenya)

    I have been off of DMD's since June b/c I haven't been able to tolerate any of the other meds. I took the first capsule at 9:15am. I've got my fingers crossed that this is the ticket. I did find out that this med has regenerated myelin, which would be great if it does for me. I'll update later after I see how this day unfolds. But until then, I have to sit at the MD's office for 6 hrs. Keep me in your thoughts and prayers and keep your fingers crossed!
    Lizzy

    #2
    That's great; good luck

    I've been on Gilenya now for about a month and a half, as part of a clinical trial. It's too early to tell how well it's worked, but the side effects have been absolutely nominal. My heart rate significantly slowed and my blood pressure decreased during the first 7 hours, but since then I've been mostly normal with some minor headaches.

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      #3
      Holy Mollie. It's happening. I never thought I'd see the day when oral meds would come out.

      I wish all the best to you and I hope your time in the doctor's office just leaves you incredible bored.
      "It's easier to be critical than correct."- Disraeli

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        #4
        GOOD LUCK!

        Best of luck to you. We are all crossing our fingers. Keep us posted! This is such an exciting development of MSers.

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          #5
          EXCITED FOR YOU

          OMG! This news is so exciting. Am hoping you all the best. I realize it will take time but PLEASE keep us posted.

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            #6
            Hope it goes well and meets your expectations. Good luck and keep us posted ! )

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              #7
              WooHoo! Good for you and good luck!

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                #8
                UPDATE: DAY 3 ON GILENYA

                And it's going...GREAT!!!(So far). No side effects to speak of other than an extremely minor headache. I woke up this morning feeling the best I have felt in soooo long. I take the low dose 0.5 mg. But the nurse at my MS specialist said they are in the middle of a clinical trial where you get, I think,4 infusions one year, a couple the next year and no more MS meds EVER!!! If that works out, how awesome would this be?!?!

                Well friends, I just thought I would let you all know how well it's going on day 3. Anyone else on or about day 3 so we can chronicle our journey?
                From the love of one MSer to another,
                Lizzy

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                  #9
                  Glad things are going well so far for you.

                  I am attending a workshop next week at our MS Clinic about "Emerging Therapies" and I know that infusions and the Gilenya are two things that are going to be discussed. I'm looking forward to learning more !

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                    #10
                    Wow, thanks for letting us know. I hope it works great for you. Keep us posted as you go along if you have the chance!
                    Take care, Wiz
                    RRMS Restarted Copaxone 12/09

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                      #11
                      Yee-Hah, yes, oral meds- about time right?!

                      So happy to hear your doing good, please keep giving us updates!

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